Bowel cancer CARERS, FAMILY & FRIENDS chat

Hi Maggie!

Between yourself and JKee I'm remembering all this that you are both going through very well. I don't know what the set-up is in England with the NHS but when Jay left hospita up here in Glasgow they made sure he had some sort of care package in place. He got the home carers coming out every morning to at least give him him a wash as he was bedbound at the end just that wee half hour of having a different face to talk to each morning was a godsend in itself and they could report back anything they thought not right to the district nurses. They came out periodically as well just to check his urinary catheter was ok and his bags etc and his nephrostomies were working ok. Both of you need to take care of yourself I know that will be easier said than done but if you think anything is wrong or need help in any way I know you will both have the common sense to ask for it. Oh is this rollercoaster ever going to stop?? I'm just weeks away now from Jay's first anniversary in passing. The weeks are flying in and I can hardly believe we are nearly at the end of May and then into June. Just hope I can get through that month ok. Sending you both losts of love and strength. 

Vicky xx

Hi Vicky I remember it well Jay in and out of hospital and all the hard work it was for you bless you soo sad you have been amazing throughout the hard times and still a great support.Simon has a body dressing on which you can take on and off the scar looks neat no nurse this time he has painkiller and blood clot injections plus calcium and vitamin d tablets hoping no set backs but he has not been out of the bed apart from a little walk to bathroom love to you xx

Hi Maggie yes he has injections they found a blood clot in his artery something else thankyou about the temperature idea will take it upstairs when I go to bed his tummy felt hot earlier so will keep eye on his temperature. He has a side table plus propped up I am hoping he will come down stairs for a little bit tomorrow but no rush .sending hugs to you xxxx

Thank you Vicky you will get through next ,month as you are strong and if you feel like crying, cry. You are a great support to us all.  

Jkee do you give him the injections and where. Les had his in his arm. Don’t forget personally I think they sent him out early. Has he had physio or anything. Just keep an eye on his temp etc. I know you won’t rush him but try not to get frustrated with him either. It is just over 4 weeks since his liver op and he is still weak but managing a walk most days. Sorry I have no ideas of good and what to give Simon apart from the build up drinks that have all the vitamins in.  You should be able to get them from the hospital or GP. 

thinking of you all sending hugs xxx

Hi Maggie yes I keep reminding him he has had open surgery this time not keyhole and 4 cancers removed .You never relax do you you listen for every movement and noise early days.He does the injection himself into the tummy luckily I don't have to do that. Gosh that 4 weeks has gone quick hope he is starting to feel stronger each week he really has been amazing.xx

Yes I think so but it was keyhole and Simon’s has not had that. Wow Les wouldn’t do that as the tummy one gave him pain for weeks. It is very early days for simon and it will take weeks but with you looking after him he will get stronger every day. Off to bed as exhausted.  Love and hugs xxx

Morning better night on top of painkillers and fluids has had a shower but back to bed telling me stories how the things that were dangerous to him in hospital from mistakes made feel like I want to complain but he won't let me good job he spoke up in hospital otherwise wouldn't be here the operation was successful just the after care was scary .Guess it's like a bad birth story we all have one but soon forget hope everyone is ok xx

Jkee I know what you mean, Les would not want me to complain either if something was wrong. Les has 3 appointments on 3, 4 and 5 June. All at different places. Again the rollercoaster continues. I hope Simon is trying to eat a little at a time as he needs to be built back up like Les. I am pleased  he managed a shower as well. He will feel better after a shower. I think we forget just what they have been through and how scary it all is.

love to everyone xxxx

Hi Ladies!

I remember those injections for blood clots. I had to give them to Jay at first but then he managed to do it himself. He used to inject himself in his tummy but he only needed to do that for 21 days. Wishing you both well and sending hugs. 

Vicky xx

Thank you Vicky. Les had his in his arm only because it hurt his tummy for weeks after. We had 28 days of them and my was he pleased when I said it was the last one. Hope you are keeping okay under the circumstances xx