Bowel cancer CARERS, FAMILY & FRIENDS chat

Did you have the call with the oncologist?

I've not been on here for a few days, I've had some time off work and needed the break from everything that is treatment related and trying to make happy memories but Martin is finding it harder to recover from the chemo so his fitness is not where we would want it to be, a constant reminder of where we are.

Love and hugs to everyone.

Nancy x 

Hi Nancy I understand having a break from everything Cancer takes everything health finance and even normal things you took for granted consumes your every thought we have had 16 months of hospital operations scans extra . We enjoy simply things just being together garden nature we don't want holidays material things just time together xx

Hi Jkee and Nancy. Jkee if you not got health what do you have. Les also will be coming up to 16 months of having scans, chemo etc. he is half the man he was and ir is so upsetting but somehow we have to be strong.  The oncologist rang and said he might had radiotherapy to reduce the growing bowel tumour and there are two suspicious ones on his lungs. He rad the letter that came this morning and that had knocked him right back as seeing it in black and white makes it so real. I was not too bad until I read the letter. Then he said to me well you need to know where everything is as it is not looking good. We are still no further forward.  Unfortunately I have been getting auras with headaches and popped to the opticians who said that the operations last year are good and to go to the doctors and ask for a blood test. I think it is stress, anxiety, emotional and mentally draining that I am now having these problems. 

nancy how many sessions has he had? Les has ad 16 but hands and feet are bad with neuropathy and suffers either being too cold or too hot. Just dreading the next stage, in fact I could sit and cry when I look at him.  I also get the brunt of it which is not his fault.  

Jkee how are you managing and I hope you are looking after yourself. I have bought boil in the bag rice and curry to make a change from other things. 

here we go again on the rollercoaster. 

I hope Helen is relaxing in Italy.

thinking of you all today xx

Morning Maggie tired today your headaches will be stress I have felt like I have been having heart attack all week feels like I am running all the time between dogs walks feeding dog Running up and down to Simon meeting a dog walker at teatime to let dogs run on a park back to feeding them both medications washing etc I know my pain is stress with the adrenaline is racing around body .I feel the same when the letter comes and explains everything it makes it real and our letters are a negative I can't think past just helping Simon get strong he has found a chicken cup a soup is his thing so that helps him you are all amazing love to you all x

I just feel like crying today but won’t as usual. I have tummy ache.  Les has decided to go out in the car and it will be only 5 weeks from having his operation.  He forgets he shouldn’t and when I said something he said he does not want to be a prisoner or an invalid. What can I do.  I couldn’t go as have had a few wobbles this morning after the letter and feel real panicky. I am so down as I am missing the girls, missing daughter in Australia and altogether feel very lonely.  My friend is making the long journey from Australia to help ease the burden and stress and to be honest I can’t wait. We sat together at school and always kept in touch. I think that is the nicest thing anyone has done for us coming that far. Do try and pace yourself as well. I have done a bit of cleaning today, not the ironing but will do that tomorrow.  The worry never seems to stop does it.  I hope Simon is getting stronger each day Jkee.  Just wish there was more we could do for each other but having a rant on here really does help. Xx

Maggie if he wants to drive we were told 4 to 6 weeks Simon already keep saying can't wait to drive can't wait to walk the dog I keep saying no your not until I say they do feel bored I think he will be fine x When your friend is here you will be fine my daughter and partner flew in from Japan today a holiday they had booked which we made her go on after she has isolated for a few days she will take me shopping her partner can take dog on walk etc every little thing will help me even my quick shower in morning will be longer where I get to wash the shampoo out fully lol You will be ok it is a lonely place I feel I have that many heads on people keep telling me I am doing well and I think you not what I am xxxx

Jkee having a good shower will help you relax. I could not stop him from driving today. I will worry until he gets back, the only problem is he gets tired really quick. He will be exhausted when he gets back home. I really can’t stop worrying and wish I had gone now.  Sat trying to watch a film to take my mind off it but it does not really work. I just hope he is okay. It will nice to see your daughter and her partner. Just someone different to ease the pain etc. enjoy that shower xx

Hi Distraught, he's had 10 sessions of FOLFOX, no 11 of 12 on Thursday, then hopefully a 3 month break. He's was advised by my sister in law who beat breast cancer last year to have acupuncture, which he say helps. He was fortunate that the cancer centre he goes to has a complimentary therapy area, these were by donation to the charity running the treatments, these have now finished so he is seeing the same therapist privately as he sees the benefit.

Everyone on here is going through so much but are such support for everyone else.

love and hugs to everyone

Nancy x 

 Distraught and Jjee, 

My husband wanted to drive, I was the same when I broke my ankle last year, it was so difficult losing that freedom and relying on someone else.

I told him he needed to check the insurance 1st which meant it wasn't me stopping him. 

it may have been for the best that he went on his own, but I can imagine your anxiety.

Nancy x

Les had two oxyplatin and another one. It is strange how different oncologists prescribe the different meds. I will ask him about acupuncture but doubt he will go. He will have to go privately as our hospital does not have that. How did it work for him.  Les is in pain with his rectum and does not think it is the fissure anymore but the tumour. These last few days I have been suffering tummy, blood in poop, anxiety etc etc. I am sure it all has to do with my bowels and tummy churning constantly.  

we are here for everyone as in all honesty we are the only ones who see them 24/7 and suffering. Where does your hubby have his pain xx