Bowel cancer CARERS, FAMILY & FRIENDS chat

Evening everyone Simon has had the sick tube out of his nose they will try to reduce his pain epidural so that is good I am glad I didn't go today for one my throat is sore headache and this sounds terrible but when i was with him it's fetch me that now get me this i put his phone on charge but put it down on table not chair felt like saying hold on give me chance I can understand he feels fed up don't think he realized just how big the operation was and expected to fell better . Today cleaning dog walking ironing didn't eat much just a sandwich still feeling no appetite trying my best. You saying about friends where is everyone I would like practical help lots and lots of messages but someone bringing me a dinner offered to take washing shopping or a cake but no nothing didn't answer anyone tonight couldn't be bothered. back to hospital tomorrow don't want him home yet because between Simon and stopping the puppy jumping up and nurse maid and puppy walker going to be hard work love to you all Helen go and get some sun on your bones Maggie your doing great xx

Jkee when you go today can you not go earlier and pop to the canteen in the hospital, that way you will get more than a sandwich. I know what you mean, our doctor friends alway bring food as she is a feeder and that helps immensely. Even someone asking if you need anything from shopping would be a help like bread and milk. I know where you are coming from, I honestly thought I would have had more support from this other friend as I have known her for nearly 40 years. As Helen said you find out your true friends when it comes to situations like this. I think we all would be there for each other if we lived closer and I feel I have made great friends with you all, as we know what each of us is going through.  Simon has had a major operation and I hope they keep him in longer to make sure he is okay and you can try and have a rest.  You are doing a great job running around etc and I am so proud of you and everyone else past and present.  Even someone taking the dog for a walk would be a massive help for you.  As always my thoughts are with you and sending you a big hug xx

Thankyou Maggie managed to get someone to take dog for a walk ignored my phoned pinging non stop and ate some toast had cup of tea going to hospital will pick a sandwich don't fancy food it's like the adrenaline is still rushing around I don't drink but times like this I could do with a brandy to calm me down. How are you and Les doing would't it be lovely if we all lived near xx

Jkee it would be lovely if we all lived near to support each other instead of virtually.  Have a little brandy it won’t do you any harm at all.  I don’t drink either but now and then I could do with a gin and orange but don’t have any in. It would probably help calm me down as well. You must try and eat more than a sandwich as you can’t afford to be poorly. I ate better when he was in hospital which I found surprisingly but knew he was getting looked after. We are the same, he said it is not the fissure but we do know the bowel is growing but don’t know by how much. It is a large tumour about 5 inches from the exit I think. You are doing so well with everything that is going on. Sending you my thoughts and hugs xx

RNE just read your post. That sounds so positive.  We have a call today from the oncologist and praying it is about an operation.  My anxiety is through the roof. It is pouring down here today and that is not helping one bit as I feel miserable enough. 

Jkee how are you coping..

How is everyone else coping.

big hugs to all xxx

I hate the calls or meetings MAGGIE let's hope he gets the operation well Simon is being sent home today I was hoping in would be in until weekend his demands are bad enough when I am there goodness knows how the heck between him and the puppy and all the jobs iI will explode. Have some pillows ready because his dog jumps all the time so to protect him will be tricky when he comes home will keep him on lead but then it wil be medications washing can you get me this  etc you know where I am coming from x We have to wait 3 weeks for results from the 4 cancers but not thinking that far love to everyone  xxxxx

To me that is too early after such an operation but what do we know. It is going to be hard work so make sure you get breaks. I really get where you are coming from.  Got soaked this morning as some electrical stuff out se needed to go into the garage.  I could not lift some so rang Lucy who popped round. I have to go out now and get bread etc. I just hate driving even worse in the rain. I am thinking of you and my thoughts will be with you.  Keep us informed about Simon and how you are coping xxxx

Morning how is everyone what a farce getting Simon out of the hospital told he could go home at 8am sent to discharge lounge midday waited until 8pm last last after we complained so many times no food only sandwich explained he cannot eat solid food nothing everyone coughing awful.The stories he has told me what happened in the ward is scary . He is in bed tried to move but couldn't I have managed at last to leave pain killers and lots and lots of water then up and down stairs all day can't do anything right at the moment for him cup of soup too watery tissues too far away for him to reach etc etc but remembered he has been through a massive surgery this time and the stress he was under in hospital complaint will be going in but he is home safe .Hope Les is ok and to all of you with love ones in hospital I send my love to you xx

Jkee what an awful carry on. You will be totally exhausted mentally and emotionally.  I hope the district nurse is coming out to see him.  I would certainly complain. I have a habit of writing times and dates and what was said down but luckily the only complaint was I could not stay with Les at 7 in the morning to wait until he went for surgery. Is he having injections to stop blood clots.  Les had his last one on Tuesday and I hurt him. I just cannot believe you had to wait that long to get him home. Unfortunately you are going to get the brunt of it all, you have him home, just make sure you check his temperature, oxygen levels and blood pressure.  Have you got one of those bedside tables that move, if not ring and ask if you can have one. Gosh I feel your pain and Simon’s.  Just quickly come on here and rant which might help a bit.  

love to all xx

Bless you Jkee. Yes I remember the `demands` only too well `get me this/that` etc. Did they send you home with any kind of care package? Will they get district nurses or home carers or anything like that in? Jay had the home carers coming in each day to at least give him a wash because he was bedbound at the end up and now and again the district nurses would come in to check his catheter and bags etc and just to generally see how he was. He was more in hospital than home in the end up though. Take Care my luvvi. Just do what you can and get some help if you need it. 

Vicky xx