Bowel cancer CARERS, FAMILY & FRIENDS chat

Thanks Helen and Jkee. Just waiting for daughter to come back as he has a fit with me and gets really agitated which I understand but I am only trying to help. In a way I hope his temp has not come down as daughter will take him in and I will follow. 

helen I don’t know how you coped as I seem not to be coping at all.  You have all been amazing xx

You bear the brunt of his frustration, it’s just the way it is. Far better to get him checked out. As for me coping it was over quite quickly whereas you have had months and months of this. You are stronger than you know

Helen x

You are coping as Helen said it's nearly 2 years here fed up on being on high alert having to keep ringing or chasing doctors hospital etc pushing for help and leaving it all in our hands. It is frustrating for him we have to forgive them good luck x

Hi all. Just had a checkup with nurse practitioner at he gp. lol okay, temp, urine, blood pressure a little on the low side.  Needs to eat and take paracetamol every 4 hours. My head is in the shed.  I actually had to drive to the gp.  Nightmare nearly crashed the car but shouted stop which I did. I think my head will be in the garage soon.  

helen and Vicky you still did a great job not like me. 

jkee hope you are coping too.

sending loads of hugs for the support you have all shown xxxx

Please stop beating yourself up, you are doing amazingly well in an impossible situation. We are not given handbooks in how to navigate this journey and just have to do the best we can. You need to be kinder to yourself xx

Thank you Scarlett.  You are right no handbooks at all as we are sort of in limbo at some stages and running around like headless chickens. I still have not had a good cry as I find it hard to do so but I know it would do me the world of good xxx

Bless you when Simon get rushed into hospital if gone off in ambulance you might think this is weird but i go into spring clean mode soon as he has gone strip his bed clean the windows etc the adrenaline rushing around my body just cant sit or settle then have a good cry and everything seems to settle. We are all different how we deal with any trauma or grieve Simon just said we are all amazing I talk to him now when he says what are you do when I am tapping away on here he is now wanting to know how you all are .xx

Bless Simon. I did the same as you when he was having his last operation and went into cleaning mode, washing etc. Les still does not know I am on here but what he does not know does not hurt him. Send Simon all our love and you are doing amazing. Sending hugs. Love Maggie xx

Hey ladies hope you are all keeping well. Just a quick question as as i know most of you will have experienced this… My dad has had 4 rounds of chemo but this round has made his legs weak. When he stands they feel like jelly and he is fatigued. He isnt having anymore chemo, is this normal and how long does it take to improve? Thnks x

Hi cxo. Les only suffered with hands and feet which he still does. He had 16 rounds of chemo. He suffers really bad with feeling cold. Awfully sorry I could not help further. Hugs xx