Bowel cancer CARERS, FAMILY & FRIENDS chat

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Hi everyone

I'm Steph from the Community team Slight smile

Here is a new thread for carers, family and friends. This is a space for you to chat, share experiences and support each other through issues related to your loved ones bowel cancer.  The previous thread will shortly be locked as it was getting rather long which can make it difficult to navigate.

Please remember that we also have other dedicated spaces on the Community for carers, family and friends. These spaces exist so you can support each other away from members of the forum who might be dealing with their own cancer diagnosis: 

Family and friends forum

Carers only forum

Supporting someone with incurable cancer forum

You would be welcome to set up another new thread like this in one of the above forums. Please just let us know if you would like any help?

We hope you will continue to find lots of support from each other and the Community. We're here to help, so please do let us know if you have any questions or support needs by emailing us at community@macmillan.org.uk 

  • Hi Vicky I am sorry the grieve came out of you but it was needed at last I must admit I often have a good cry and feel better the alternative is anger but would love to just smash a plate or throw the phone at wall sometimes but crying is better for me but I am finding it harder with more and more operations appointments scans etc think we would all like a break from it all but long as this lump is not cancer I am ready for next fight just going to miss the grandchildren again in the summer holidays bless them but will see how Simon copes with the chemo. Vicky you have been a great support and I did tell them today what a wonderful support network we have on here God bless You XX

  • Jkee I lost it with him at tea time yesterday. He insisted on having a huge tin of tomato’s and a load of fish and he had not been to the loo and in agony.  Then he went for cornflakes before bed. I said no and then he lost it again with me so I told him to eff off and walked away.  He had a cup of milk and a yakult then. He has been up and down to the loo loads. I think he has been. I have printed off a diet sheet for day 5 as hospital said he could eat anything. He is not allowed to push as it has to come naturally due to the bowel being stitched.  Honestly I am going to have a heart attack with worry and stress that this is causing me. Somewhere he opened a pack of revels and I have looked everywhere and can’t find them. 

    vicky just take it easy until the scan comes back. I am sure everything will be okay. I know you will be worried of course you will but take your own advice, easier said than done.  I am glad the doctor has given you something just to calm you down.  Please look after yourself.

    hugs to everyone xxx

  • Thanks Jkee

    Yes I needed that cry. My wee dog Jack was looking at me as well as if to say `what's wrong` and jumped up on the couch beside me giving a little whimper as if to say `It's alright mummy, I'm here`Slight smile. I'd definitely be lost without him. Had not a bad sleep last night Diazepam must be doing it's job again. Thinking of all you lovely ladies always. Take Care. 

    Vicky xx

  • Thanks Maggie,

    Yes time for me start taking some of my own advice now. Bless you you must be at the end of your rope with Les but you'll know its not him causing this it's the illness. I hope things will settle down for you eventually. Take Care. 

    Vicky xx

  • Hi Maggie Simon is the same don't worry with the operation and re section of the small bowel food has to slowly go through he helped himself to a spicy sausage roll a friend offered I said don't eat that you will suffer it's worth the pain he said no it wasn't surprise surprise . Yesterday when we saw oncologist as you know they give you all the information on the chemo drugs side effects what to do etc I told him to read it his reply I will leave all that to you honestly you cannot win I call it caring he says nagging but he knows I am doing it for him but gosh it is draining just keep going x

  • Jkee I had a word with him this morning and after yesterday he has agreed to stick to a sensible diet after showing him what it said about high anterior resection.  Your right jkee it is totally draining.  Like we I just keep going.  Big hug to you.

    big hugs to everyone xx

  • Well what a weekend. Les could not go to the loo as they told us to cut down on laxatives. He has been in agony so yesterday morning I rang for advice and they asked if we could go to the ward. Took him down and he was thoroughly checked.  His bloods were okay as well. He is back on double the dose of laxatives.  Just hope this eventually works. I was so exhausted I slept all night therefore not sure if he has been yet. Any other advice would be great. 

    thinking of you all and big hugs xxx

  • Morning Simon has this problem we have now added fibre breakfast bran and whole meal bread lots of water it does take a few days to go through Simon said sugar seems to hold on to it try and stay of it. Can't believe he is advising you when he is the one to listen to his own advice.He says he never pushes just takes his phone and sits for a while upright he says he is still learning as well must be a common problem xx

  • Hi Jkee. Just been to see him as he is still asleep.  Bedroom stinks so must be quietly pumping.  He must have had a bad night. It does say not to eat whole meal bread etc. I have kept him on a light diet of mash and chicken. They told him to drink plenty of orange and water. Hopefully like Simon says it will take a few days to go through.  I might start adding a little fibre now like Simon says.  

    hugs to everyone xx

  • Maggie we had low fibre to start with as well it will settle when his diet became more varied think it was about 4 weeks slowly introduce. Obviously the bowel is recovering so don't want to rush to loo either even now Simon still suffers x