Bowel cancer CARERS, FAMILY & FRIENDS chat

Morning what is wrong with this weather no wonder we are fed up need some sunshine hope it is dry for the wedding. The rash is from targeted therapy he has antibiotics but he hate it and won't go out very itchy. I am not going for the scan it is 2and half hour drive and I am a very anxious passenger no way can i do motorways but of course when we have meeting about the scan I will be with him rough week after chemo on Wednesday then Manchester Friday will be glad for this time next week.I  told him ask someone to take you to to be honest my daughter wouldn't be able to drive all that way Simon is a good driver no worries about driving himself but it says you have to have a special drink a hour before which can cause direahea and they give you a buscopan after chemo not sure how he will feel so much going around our heads just need a break from it but I know will not happen if the weather was nice I would keep taking Hugo out.Love toyou allxx

The weather is dreadful and makes you feel weary etc. there is no way I could drive to Manchester either as it is about 2 hours away.  My daughter drives all over so there would be no problem. I bet your head is in the shed with Simon and the itching, that is awful. Do you not know anyone who could take him or use an Uber taxi as they are cheap. Are you near a train station so you could both go.  With him having to have a special drink an hour before he could actually go a lot earlier and take it when he is there an hour before. Gosh jkee so much going on. Les was sick this morning but feeling a bit better now.  Just keeps buying stuff on eBay as he is bored. I do wish I could help more with all what is going on. Another idea is you could stay overnight before.  I really wish you can get the help you need for this xxxx

Hi Maggie it's soo boring dark day even Hugo has slept all day Simon has been laid on sofa watching old war films so i have been shopping on line not good.Sorry les was ill bless him I will be staying if he can have surgery just hope daughter will have hugo can't see them offering but we will see hope you have better week xx

Jkee my fingers are crossed for Simon. I have washed and ironed just a boring day like you.  Les in other room watching some sci fi. I already feel alone but will be going to bed shortly to try and relax. Keep your chin up and don’t forget to look after yourself. 

love and hugs to all xx

Hi Ladies!

How are you all doing? Hope you are both managing to stay strong. Well the dust has just all about settled after Saturday. The wedding was lovely couldn't have gone any better. The weather was a bit `iffy` in Glasgow apparently it snowed on Saturday morning but must have missed our area or was gone by the time I got up. A bit cold and dull but managed to stay dry. The bride was beautiful and the groom very handsome- need to say that as he is my son. They set up a remembrance table with photos of Jay, his mum and his brother and his wife and Nicoles mum it was really lovely. I said my speech and got a rapturous applause after it so that felt good and a few including Nicole's dad Leo came up and gave me a huge hug after it. But for all of a good day it was I still felt `empty`. I was going around doing the mingling thing and laughing and chatting away but you know that thing where you just still feel really lost? I sat with my sister and her two friends and my dear cousin and her friend both of whom have also lost their husbands so it was like `widows and singles corner` where we sat. I wasn't drinking a lot because William had nominated me for `grandma duty` and I had to take Myla home because it was the `wedding night` etc so he came to me about 11 and asked if I could take her home as the wee soul was `flagging` and getting really tired. In a way I was glad to leave eventually as I just felt like a `spare part` in the end. Everyone that was there all William's friends parents had someone to partner them and I didn't. So my cousin and her friend they hadn't been drinking so they volunteered to take me Margaret and Myla home which was good because I didn't relish the fact of having to try to get a taxi home at that time on a Saturday night. So it was a day of mixed emotions and I did leave the hall a few times to have that five minutes on my own but I was fine. Now time for them to settle into married life. Take Care

Vicky xx

Vicky it sounds as though you did a fabulous job but I think I would have been in tears and probably would not have stopped. I am so pleased the day went great and husband and wife looked beautiful and handsome. I am not sure how you kept it all things considered. I am pleased you had the little one over night as that is company for you and not going home on your own. I am just so pleased for you and your sister and cousins. You weren’t a spare part as you had myla but I know what you mean. I can’t believe it is all over now.  Jay would have been so proud of you just remember that. We are all proud of you..

jkee did you manage to get transport for Simon to get to Manchester.

love to everyone. Maggie xxxx

Hi Vicky and Maggie Vicky I was thinking about you Saturday sounds like the day went as good as it could go without Jay I sounds like you did a wonderful job to try and keep it a happy day for your son.I think we all feel like a spare part when we see other couples I will hate it I am soo used to be by Simon's side always we have been best friend for 30 years have gone everywhere together so well done. Simon has gone for chemo and target therapy today as usual problems they lost his chemo from pharmacy should have been 1030 stated 1245 he went on his own because we couldn't leave hugo all day and evening now he is delayed 2 hours it will be about 7pm he is home. He still is determined to drive himself Friday I really dread it saw it was going to rain all day as well had a call from Pet scan as well yesterday the have arranged a pet scan not sure why this was never mentioned " reasons I think either Manchester will want to see his other Cancers if they have grown or any new ones or our oncology want to see how Chemo is doing goodness knows just gut feeling it will all be bad hate scan results if you are terminal I guess the worst is Chemo not working another appointment sat he re in dark place love to you all

Jkee I can’t believe you are going through all this and Simon having to go on his own. It is so sad that no one will watch Hugo for you, even a couple of hours.  It just shows we have a very small family and cannot depend on outsiders. I hope Simon is okay when he gets back. Les will have another scan shortly to see if this type of chemo is working. Like you I dread it.  I know how you feel, very lonely and isolated from people.  I have got to the stage where it is only the hospital I go to and that is my limit otherwise panic kicks in.

sending you a huge huge hug xxx

Jkee dreading asking you but how did Simon get on Friday. I am praying it is better news for you. I have been thinking of you and sending all my love and strength to you both xx

Morning he made it ok what a long day he drove to Manchester left here 0830 didn't have to be there until 1pm  I was worried sick the chemo always makes him constipated and no food before scan and 2 days white diet he said he was ok arrived at 11am just walked and found where he needed to be had the awful drink at 1pm but he said had no taste had to lay on his belly for the scan for 45 mins very painful and couldn't get up but he made it home my gosh I was pleased to see him he looked grey but the stubborn fool wouldn't let anyone drive him he loves driving. spent the last 2 days resting and laxatives which have now worked pet scan on Saturday then the meeting which the decision will be made . Is the Chemo working has he more cancers has it grown can the operate on the tummy take everything away still lung Cancer not sure which will give him more time not a meeting to look forward to but are any bloods tomorrow target therapy Wednesday I just pray he stays ok love to you and Les xx