Bowel cancer CARERS, FAMILY & FRIENDS chat

Good for you Jkee. Keep pestering.  I must admit your posys sometimes do not make sense but I get the gist of things.  Fingers crossed for tomorrow. How is Simon coping with chemo xx

Simon has been ok we are on 2nd week so he always feels ok 2nd week he accepts whatever is thrown at him I am the one not sleeping and when I do sleep it's nightmares how do you clear your mind people do not understand it is with you 24/7 have a sick feeling today tomorrow is bad news we are used to it now if he has anew Cancer his body is not strong just going to think the worst instead normally I go in positive sending hugs x

Same here Jkee. Les not off the loo but see oncologist on Thursday as it is probably this new chemo which he has reacted badly to. I have an infection in tooth and this morning right eye is blurry, I am sure it all down to stress and anxiety and clenching my teeth all the time. It is just appointments and more news to take in. I feel bloody 100 and act like it. Trying to clean but Rufus bringing in grass and mud to chew. Lovely. And shaking it everywhere xx

Evening had call from oncology not good Simon's cancer markers still rising so he said Chemo is not working they have stopped  it no point if markers are rising.Next step is CT scan is see what's going on it feels like we are back to square one markers rising delays scan results waiting .Asked to do a pet scan because the CT did not show his last Cancer only the pet did but no he has to have CT then a meeting then depending on that and more bloods a pet scan here we go again we are gutted he rang the bell I hoped just a tiny bit of hoped we were finished broken Cancer is a bitch xx

I’m so sorry you’ve had that news, Jkee. I wish I could give you a big hug. Will they offer the chemo again after the scan?

Our chemo has been delayed for a couple of weeks as we both got Covid. So upset as we’ve been so careful. We are both negative now but my husband lost quite a bit of weight so his nurse recommended waiting for an extra week to give his body a rest. 

Jkee I am gutted for you. They should offer a PET scan as CT does not show up other things. I am devastated for you.  I could hug you and I am not a hugger. Simon is a fighter like Les and we will be there for them. Keep fighting for him .  I bet like me it has aged us just watching them and nothing we can do to help.  Nothing anyone can say will make you feel better. It is lonely as well  

scarlett Les lost 4 stone after 17 bouts of chemo and two major ops. This chemo does not suit him, he passes wind and goes to the loo a lot. 
Les just kept going and would not stop even after 2 bouts of sepsis  he just said ‘throw it at me’ even though he could hardly stand.

we are going to see oncologist today and dreading it and to get the Hickman line flushed. 

oh and his Fischer is back so bottom really painful again. 

sending you all big hugs and love xx

Poor Les has been through it, what a strong man he is. Saying nothing about how strong you have been to go through this journey with him. You are right, it can be very lonely. 

wishing you the best of luck today and praying for good news for you xx

Well he is off chemo due to the painful Fischer as it will not heal properly and he can barely sit down and is very painful. I knew this would happen again.  Another rollercoaster for us all.  It is very lonely trying to keep them safe but then we go to hospital appointments etc and it is full of people. We just can’t win xx

• Oh Scarlet that is rotten that has been my fear all along but we can only do our best to keep them safe that is the hardest part keeping safe and now we are going into winter. The Oncologist  did mention  depending  on scan different  Chemotherapy  this one isn't  working  saddest  part to me is just for a slight  moment  when he rang bell a little  bit of joy lasted  5 minutes  soon as I asked what his tumour  markers were it was like the same last year.hugs to you hope you  both get well and get back on chemotherapy  x