Bowel cancer CARERS, FAMILY & FRIENDS chat

Gosh he is gorgeous and a nice size. We have leather so nothing covered in throws but the best thing is they don’t shed. Those eyes just make you melt. I have just put Rufus yo bed so fingers crossed for tonight and dare I say no poop for me in the morning. Did you have a crate for Hugo xx

Hi Maggie yes we have a crate in a utility room he goes in at night with cage door open and room door shut he has routine lol take out wee bring in say night and shut door only wakes when we come down hopefully stays that way .Hope Les has been ok speak soon x

That sounds like a good idea. I will try that when he is older.  Les asleep.  Keep your chin up for Simon xx

Morning ladies. Jkee how is Simon doing on the chemo. Les had his second one yesterday and has the pump on til tomorrow. It is continuous appointments now. The steroid makes him wide awake and something makes him go to the loo as soon as we get home about 5 times. He is still in bed so will wait and see what he is like. The sickness started the day after the pump was taken off and flushed. 

thinking of you all xx

Hi everyone. Getting a little worried as I have not heard from anyone. I really hope you are coping.

big hugs and thinking of you all xx

Morning sorry not been on not sure where to start Simon went again with 4th Chemo got to ring the bell which gave us all excitement for the first time in 2 years for about 5 minutes I asked Simon to check with nurses his Cea cancer markers to see if they were down after Chemo but they were not something in the back of my mind knew we were not due happiness it niggled me until we sure a oncologist Thursday now our oncologist is not avaliable been of not even sure if coming back so all she said was he needs more Chemo 6 to 8 but our oncologist will have to confirm it also his numbers should be around 2 not 7 as Simon said when he got told he had 3 months to live it was 11 so to us half dead. She said will nedd pet scan but again we will have to wait 2 weeks to come back to see if his oncologist has not left. Well I have come home thinking he had bloods taken on Thursday to see what teh numbers are doing so they will have result I am not waiting 2 weeks just for someone to delay us again I am ringing Monday if he need Chemo he is due next week and if he is leaving he is not caring enough to turn up last Thursday no not this time time delaying us ready to fight Monday. Not sure if it all makes sense but I have cried buckets so have not been able to come on I know the outcome another tumour x

Jkee fight hard for Simon as you say ring up on Monday. We don’t know Les markers and I don’t think he wants to know. Second round of this chemo and again started Thursday and up all night last night, can’t go to the loo then can go four to five times, throwing up etc. he looks dreadful.  I am so worried like you, no wonder you could not come on, the stress and worry says it all.  We just have to stay strong but it is so hard.  I do wish we lived closer and could have a MacMillan meet just because no one else knows what we are and have been through..  sending you a big hug xxx

Maggie you are so right no one understands if one more person says keeps positive I will scream lost it yesterday with Simons sister first phone call in 2 years no visit just a few text she said enjoy it while Simon is well think positive I lost it said what is positive enjoy it are you joking where have you been you have no idea oops I did feel better bit you know Maggie 2 years is a long time just pray for just good news for anyone going through Cancer and the hardest bit is missing out on family grandchildren and looks like holidays and Christmas but all anyone says to me is be grateful he is here I so wish we were closer how is the puppy Hugo is being a pain at scratching the sofa to get my attention treats etc but having said that went for a lovely walk yesterday talking to dog people around the lake better then sitting in love to you and Les few more days he will get through the worst bit xx

His sister does not know and we are not telling her. She is not a very nice person and I don’t want her here. Only found out he had a new niece 8 weeks after she was born and that came by letter, not even a phone call or anything. We are missing out on so much but I just might take Rufus out as his 2 weeks is up on Monday and I am sure it won’t harm. Took him to daughters new place (not built yet) as it is like a park and he thoroughly enjoyed himself on a very long lead, got us to the clarts in mud but there is more to life than being dirty. Here I am 

at least it took my mind off things for a while. It is only 5 mins in the car as well. I just might take him out in the real world and speak to someone hopefully. Would you risk it xx