Bowel cancer CARERS, FAMILY & FRIENDS chat

Hello everyone. I’ve not been on here for a few weeks as I was concentrating on spending time with my dad, so am not up to speed with everyone’s stories. I hope everyone is doing okay. Unfortunately, my dad passed away two weeks ago today.  It was one year to the day since his liver resection surgery. The last few weeks were really tough, and the final week itself pretty traumatic. The funeral was held on Wednesday. It was a difficult, but inspiring occasion. There must have been well over 200 people in attendance. The days after his death were a bit of a whirlwind trying to organise the funeral. I just feel lost now, and fluctuate between feeling numb and feeling overwhelmed with emotion. Sending love and best wishes to you all x x

I am so very sorry for your loss. I wish you and your family love and strength. Your dad would be proud of you xx

Dear Matt. I am sending all my love and condolences to you and your family. One huge hug I am so very sorry you have had to deal with this.  All my love maggie xx

Hi Matt!

So sorry for your loss. Sending condolences to you and your family. Take Care

Vicky.

Hi all NO chemo again liver enzymes still high but are coming down gutted again only managed 1 so far as per usual no good phone call really struggling now x

That’s awful news, Jkee, I’m really sorry. How is he in himself? Is there anything else he can be offered in the meantime? 

we are waiting for scan results following the second course of treatment. I both want to know what’s happening and dreading it at the same time. 

this is a journey I wouldn’t wish on anyone xx

Hi Scarlet10 nice to hear from you we just have to wait but my mind is thinking what is going on inside his body if no chemo but after 2 years of the downs of Cancer nothing is straight forward delays waiting operations scans etc my heart goes out to you no one understands unless they are on this journey very lonely place wishing you good luck with the scans xx

Jkee I am so sorry to hear that.  Try and be positive and I know it is so hard. It is a lonely place with all the waiting etc.  the oncologist is ringing Les tomorrow so we will see again. Gosh I hope they come down quickly so he can start again. Have you looked into the trial in Birmingham xx

scarlett wishing you all the love and luck. Keep your chin up.

Love and hugs to everyone xxx

Hi Jkee!

So sorry to hear that. This is what I had to go through with Jay of course and it just sucks!! You think you're getting somewhere and then the worst happens. I know it's easier said than done but please try and stay positive. Yes it's frightening to think what is going on inside them if the chemo is not being administered it seems like the `magic potion` that will make them better and you don't know what to think if it can't be used. Can't tell you what was going through my head when they said that Jay's chemo would need to be withdrawn completely because of the kidney damage. I started asking all sorts and looking into other forms of treatment that may be able to be used but was told no there was nothing else. Please don't think this way for Simon though everyone is different as you know and hopefully they will be able to do something for him I really hope so. Take care Jkee. Sending you lots of love and strength.

Agreed everyone is different. All Les done was take different vitamins and the oncologist said that was okay to do.  What a journey. Oncologist rand and he sees her on the 26 September after a scan which we don’t know when. I am not getting uptight as it is not helping until it gets nearer the time. I must admit fingers crossed he is doing well considering the two major operations he has gone through. He was told on the bowel op it was a T3 but not sure what that means. I have not looked it up just in case just keeping my fingers crossed.

love and hugs to everyone xxx