Bowel cancer CARERS, FAMILY & FRIENDS chat

Jkee does he have chemo every 2 weeks or every day. What are the side effects. No doubt les will start again next month when strong enough. His fingers and feet are very tingling and still numb but seems to be coping. My fingers for Simon are crossed xx

Hi Maggie he has oxaliplatin and Raltitrexed every 3 weeks for 3 months day 3 side effects start nausea fatigue also got angry and depressed about 10 days in but we are 2 and half weeks in further than last time so I'm hoping his fingers and toes are as they are now no worse at moment still numb from last time longest 2 weeks every but so far so good condsidering your Les is amazing xx

Fingers crossed for you and Simon. Les did not have nausea but that is not to say he won’t get it next time he starts. Fingers and everything crossed for them both. 

love and hugs to all xxx

Hi Ladies!

How are you all. Hope everything is stable with you all at the minute. Jkee good luck with the next round of chemo hope Simon gets the go ahead for the next one. Maggie hope everything has settled now between you and Les sounds as though it has. Helen hope you are keeping well too. Back to rain again here in Glasgow. Still little bits n pieces I want to do in the garden but the weather has put paid to that again we have an unsettled week of weather this week they said. The kids here go back to school a week this Wednesday such a shame not been much of a summer for them weatherwise. Margaret sees her bowel surgeon on the 25th so that is looming. Sending love, hugs and strength to you all as always. 

Vicky xx

Hi Vicky. All quiet here.  I had a word with Les and it has settled down. Speaking to me much better and interacting more as if I exist now. He is still having problems with the poop side but that will take ages to settle down. His oncologist is ringing on the 14 so we will see what happens next. Don’t mention the garden the hedge is so high now that I might tackle it but not sure as there is a lot of it.  We do see the grandchildren a bit more as he feels okay and can enjoy them which is lovely. My fingers are crossed for Margaret but I am sure she will be fine. We have not had that much rain the last week so that has been nice. Les is sorting the garage out and actually throwing things out as he needs to get the motorhome in it. He won’t get a skip though. There is a lot to sort out as well. If it keeps him happy that is okay.  I have posted a picture of it and yes he still has his motorbike lol. 

I hope everyone else is coping.  Sending hugs and love to all xxxx

Hi Vicky just had call no Chemo tomorrow is liver levels were very high will try again in a coupe of weeks just waiting to hear from oncology to see what they think I am soo angry we really needed this why can we not get some luck so upset . Maggie is this normal did Les get cancelled at all. Hope everything goes ok with Margaret love to you all x

Jkee. Les never had any cancelled only when he got sepsis at Christmas and just after. His liver was fine, mind he took a lot of supplements to help with. He is still taking them now. I can’t believe it is happening to you again. I feel so so sad for you and Simon. He ate a lot of yoghurt etc and vitamins and still does now.  On the 8 March this year on his 16 cycle this was his bloods. WBC 3.9. Hb 107. Newts 2.2. Platelets 125. oxaliplatin and capecitabine. He also had pre/post calcium and magnesium.  I hope that is some use to you.  Did you ask about the levels so you can check xx

Jkee! They had to cancel Jay's a few times I think as well. He always had to go to the clinic to get his bloods checked- seems that long ago now and on a few occasions it was his kidney function was low so they wouldn't do it for that and it showed up he was dehydrated a couple of times so they wouldn't do it for that either. If I remember because of his low kidney function that was one of the times he had to go back into hospital for them to get it back up again but think that was the time they discovered the kidney damage and so the chemo had to be withdrawn completely but hopefully nothing drastic like that for Simon. Take Care. 

Vicky xx

Hi Maggie thankyou for your advice I have looked into food to get his liver enzymes down anything to get it lower had call Chemo hopefully next Wednesday bloods Monday nothing is easy is it ' Good to hear you and Les are on the right path you both are suffering but it helps when you can talk love to you xx

Hi Jkee. I must admit he took anything to keep his bloods okay even when he felt awful. I think the worst thing is the tiredness and his face, legs and hands with neuropathy.  The oncologist was thinking of stopping it but he went in and said he was coping okay.  His hands and feet are still the same.  I must admit he is amazing like everyone else is. It is the bloods that count and hopefully Simon will start chemo again. It is not easy as we are on the outside watching and worrying but I know you will never give up just try and be less anxious, I know easier said than done as it is always one thing after another. I am thinking of you and have everything crossed for you and Simon.

love and hugs to everyone xx