Colonoscopy- tumour found

Thak you Pattyk, I've just spoken with the colorectal nurse, my cancer is just inside my anus, my consultant has sent over my file to Manchester to see if there's someone who could do a "local" op, as otherwise its a big op via the stomach, amd probably being left with a stoma, though that's not too much of a problem for me. So I now have more waiting, at least 2 more weeks, I was diagnosed on 11th June, and had the 2nd colorectomy on Thursday just gone, 2 days after I saw the consultant. I'm also annoyed that they've just built a 2nd Christies hospital onto to my local hospital yet I would be travelling into Manchester. But I guess that's what's gonna have to happen. Also the 1st colorectomy showed 2 tumors, but when I had the 2nd one, both the tumours that were on the 1st one were nowhere to be found, but there's this one just inside my anus, which I may lose, and I don't know what means, because I forgot to ask, I'm hoping to at least have a telephone call with the consultant again, as I have other questions. I hope your husbands treatment helps, thank you for taking the time to write to me.xx

Hi MissTee. They might have meant that you would lose your anus. If the tumour is just inside your anus then they perform an APR - abdominoperineal resection- because there isn’t enough bowel left to stitch back together then they sew up your anus - it’s sometimes causally referred to as having a ‘barbie butt’ with permanent colostomy (stoma). There’s lots of people on here had it done and although it’s a big op they recover well and find their stoma to not be a problem.

Might be wring but you could add it to your list of questions for the consultant

Take care

Karen x

No Problem Miss Tee!

• My husband has a permanent stoma also. He's used to it now and it's just like 2nd nature to him now with changing it etc he's even got a name for it. It was just about this time last year he got his stoma operation. Then it was just his tumour operation to go. Everything seemed so straight forward and they were going to get rid of it. Now one year on here we are again back to square one. Yeah just hope the chemotherapy works now.

              Vicky x

• ThaThank you Kareno62 that helps me a lot, it makes sense, though he said it as throw away comment and I just remembered about it. xx

Hi kareno62 thanks qgain for the help about losing my anus, my consultant says he's sent my results to Manchester, as they have a piece if equipment there that they can use to see how far the tumor has gone through the bowel wall, and if they could remove it "locally", and oncologists have said that I may need radiotherapy and chemotherapy, or maybe the op through the stomach. But I've now got a 2 week wait for Manchester to decide what they think. I'm slowly slipping off my tiny island, and being strong for those around me, I'm venting, and I apologise. I don't know where to turn, my bottom has now started to itch and become painful, the tumors just 4cm into my anus, its 35mm, I can't even get a telephone call from my GP for 3 weeks,my consultants away for 2 weeks, I don't know what to do. Sorry for being a pain xx

Hi MissTee

I am Shocked that you can’t get a telephone appointment for three weeks given your circumstances. However please give our helpline staff a call . They can access Macmillan nurses and talk things through with you .

0808 808 0000. Please reach out to them . They will give you assistance . You are not on your own . Every Boots chemist has a pharmacist that gives cancer advice. You can go to one of them about the itch too .

Take care ,

Court 

Also after hours you can just phone nhs 111 and see if you can get an out of hours appointment .

Court 

Hi, Court, thank you I may just ting 111 ifcthe itching and pain gets worse

Miss Tee.Cant add much to the great advice given by others.just wanted to wish you well and say that I have a barbie butt and iliostomy and its nothing to worry about.just get rid of that cancer,thats the main thing

Kath

Thanks katz51 your message helps xx