Hi All,
Not posted for a while as have spent practically all summer waiting for results of scans and tests.
After an amazing response to Nivolumab unfortunately I have developed hepatitis from the treatment and it has had to stop.
My liver enzymes went through the roof, I think my ALT was over 500!
I was admitted to hospital and put on a high dose of IV steroids and this originally brought it down but it seems to rise every time they reduce them. They have now introduced a new tablet which is quite experimental and I am hoping this starts to work.
The scans in hospital indicated progression of the residual cancer into my gallbladder, which they said was a most unusual spread, however after a months wait and CT, MRI and PET scans it shows no widespread metastatic disease which is such a huge relief.
There is a slight area of activity from the residual growth on to the duodenum which is due to the treatment having to be stopped, however, I have an appointment at the huge University training hospital in the city nearest to us on Monday, where apparently the liver surgeons are outstanding. The MDT have met and they have slotted me in quickly. My consultant has asked if they would resect the area and they have been considering this. I have everything crossed that they will be able to operate, as this was not possible before the treatment. This would be a huge op and not without risks, but I am happy to go ahead and get rid of it hopefully for good.
So all in all a bit of a mixed bag … disappointed that immunotherapy has had to stop but happy with the shrinkage!
Will update as soon as I know … fingers crossed for everyone going through treatment and tests at the moment.
Hope this may be helpful for anyone starting on immunotherapy.
Take care all and keep safe.
Oh Phiebeb21 so sorry to hear this. I hope you get the surgery you need. Shrinkage is good news. I'll keep you in my prayers. Stay strong and positive, you can do this your such a strong lady. 
