Chemo care ! Top Tips:-

Yes it’s perfectly normal , I could eat a while sweet shop . Hated anything bland . Had loose stools too . Was given Imodium which helps 

Hi how's your treetment going do you feel better iv just had my first oxaliplatin

Hi All, thanks - I am on round 11 out of a total of 12 rounds of FOLFOX following stage 3 colon cancer and surgery last July.  I think I am doing okay but it has not been much fun. I share a lot of the side effects that have been discussed in this chat group: including 'first bite syndrome' for the first couple of days, a lot of sharp tingling in the hands and sensitivity to the cold especially on my face. Low energy levels so I've rested a lot, even thought I should be working! The worst has been insomnia and a horrible taste in my mouth nearly all the time due to lack of saliva. I've been using Boots expert dental dry mouth spray which gives some relief. Cutting back on the steroid dose they've given me has helped my sleep a little. I can't wait for the nausea to go away - comfort eating has helped a bit and that dental spray, and sugar free sweets. Hope everyone is doing okay.

I am 8 days after my 2nd oxaliplatin. The fatigue is awful for me and not wanting to eat or drink so have to make myself.  

• Hi Dom 1969 is mulligatawny soup nice 

Hi paul112 how's your treetment doing can I ask how did they put on on the tablets on the 3rd cycle I'm coming up to my second cycle this week

Hi I like it, its nice on chemo as its not too spicy and still flavoursome enough to cut through the chemo metalic taste, I also liked watermelon on chemo as it seemed to cleanse my mouth and has lots of fluid in it 

Anything with a stronger flavour helps with the "everything tastes like cardboard "effect of the chemo

Kath

Hi I had 3 lots of tablets which finished last August! 3 lots over 3 months was gruelling but it did the job!! Never felt so ill in all my life but so glad it's worked! Cancer has gone and I hope it never comes back!! I consider myself one of the lucky ones!!! Wishing everyone who is going thro this lots of luck!!! Keep going it's gruelling but worth it although I am aware that lots of people have it a lot worse than me!! Keep positive all!! 

Hi Paul 112.   Hope you don't mind me asking...but did you have to have surgery? I was on all that capox stuff....and chemoradiotherapy for about 4 months...and at the end...they said I didn't need surgery as the tumour had shrunk away...so they put me on watch and wait.....I have just had a pelvic MRI scan a few weeks ago...and nervously waiting for the result....but I'm wondering if that sort of scan can tell if any cancer cells have migrated to anywhere else...like the lungs or the liver? Sorry if this isn't relevant to you...but maybe anyone else on watch and wait might be able to know if there is any test to see if there's any spread? Glad to hear you are doing well :)