Was a bit confused as to which group to be in. I was diagnose and treated for colon cancer 13 years ago and given all clear after my final colonoscopy 3 years ago. Oxaliplaten with Capec, low anterior resection with stoma, stoma reversal after about 4 months. All went well (for an unspecified definition of 'well') got recovered and back to work. Recently I had a lot of trouble with coughing and breathing. After taking on the GP appointment systems and getting nowhere I did a 111 on line and got sent to A&E. Got an x-ray and some antibiotics to clear out any infections, made the phlegmy wheeze behave. Was booked in for a ct scan and this showed a partial collapse of my left lung with a mass in there. Also showed lymph node and adrenal gland involvement. Bronchoscopy was carried out and the doctor managed to get a good biopsy. When the biopsy was analyzed they found it was actually my old freind the bowel cancer that had spread after all these years. So even though I have a cancer tumor in my lung, and some pointers from Latchbrook, (thank you) I figured this was the best group to join. I have now been referred back to oncology and am waiting to hear back from them. Has anyone else experienced this scenario?
For information I was 49 when initially diagnosed. I am now 63. Always been fit and strong so hopefully will be able to handle what is coming.
Good luck to everyone going through this.
Hi Whisperer
Welcome and glad you found us .
A slightly different situation as my mum was stage four at diagnosis . However she had seven years before she had a lung met pop up and her primary had been removed six years before . Then around and seven years she had more lung mets and lymph nodes. The last time she was in hospital for something else and they found it by accident . Lung mets are very slow growing apparently however she was scanned for most of 13 years and nothing showed up . She stopped scanning and up they came . She was in her 80s by then but she did have more treatment and it was responding well . She had a lung tumour removed surgically in 2016 .
Age caught up with her in the end but she still had chemo options and avenues open to her .
Are you treated in the U.K. ?
You sound as though you have had more scanning than we normally get .
You are in a good strong position going into this and will hopefully get good responses that open up other doors .
Take care ,
Court
Helpline Number 0808 808 0000
Hello Court,
Thanks for the reply. I am from Lanark, and have been invading England for the past 40 years or so. Got as far as Suffolk!
Apparently second time around they don't hang about much. The scans and stuff were given almost back to back and I am up to oncology on Wednesday for the treatment options.
I must say it has all got going much faster that the first time. It was almost four months last time before we got into treatment from the GP's referral. This time, less than a month from an A&E visit. I'll take that.
Hoping to be in treatment soon.
I read about your Mum, what an inspiration, and if you dont mind I will take her story with me on my trip. God bless her. Mine is not so bad.
All the best
CraigO
Hi Whisperer
We are not so far away . Mum was treated at the Beatson . Things have changed so much since she. First had treatment but I totally agree we are very fortunate to have good cancer care in Scotland .
I see Avastin is now allowed to be used here too so that’s another encouragement .
take care ,
Court
Helpline Number 0808 808 0000
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