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Hello everyone,

I have rectal cancer & am having treatment oxiplatin intravenously & Capecitabine tablets.

I had been struggling with blockages & ended up in hospital twice the second time I had an emergency temporary Ileostomy stoma with a pouch which I am learning to adjust to.

Due to being in hospital I had to come off my medication. But am starting it again on Thursday.

I don't if anyone else out there is in the same situation as me.

Would love to hear from you.

Kind regards

Rainbow Sky

Gemmary 2 months ago

Hi, I had rectal, LAR with no stoma, and adjuvant chemo, but 5fu/la by IV, so a different regime. Now hit 5 years NED to give you hope.

Kareno62 2 months ago

Hi Rainbow sky and a warm welcome to the board. Sounds like you’ve had a rough time so far but hopefully the ileostomy will make life much easier for you. Good to hear that you’re learning to cope with it - there’s lots of support on the board below if you want any advice or tips?

https://community.macmillan.org.uk/cancer_experiences/ileostomy-and-colostomy-discussions-forum

Theres some great thoughts and experience of this recent thread about capox but feel free to start your own if you’ve a particular concern that’s not covered?

https://community.macmillan.org.uk/cancer_types/bowel-colon-rectum-cancer-forum/f/diagnosis/292722/capox-journey

Hope the future sessions go a bit better

Take care

Karen x

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