Morning all,
Today, 3 weeks after 5 weeks of radiotherapy with chemo tablets (Capecitabine) hubby is starting his IV CAPOX regime. Oxaliplatin today followed by 2 weeks of capecitabine, 6 days off then repeat another 3 times.
He is currently feeling great! The best he has for the last 4 months so going in knowing it’s not going to be the best is a little worrying.
BUT this is what they recommend to give him the best chance and we are holding onto that thought and planning what we might do in August/September.
I’ll post all the good & bad on here as 1. Therapy for me ( it does help to write about it) & 2. Info for anyone who is going through the same thing.
please let me know what you think and any hints & tips for either of us to get through the next 3 months.
Good luck in all your personal journeys. Taking it one day a a time.
B x
Hi Bella
Great to hear that hubbie is feeling up for this!
I am half way through the same as adjuvant chemo, ie 4 cycles Oxaliplatin followed by 2 weeks of capecitabine then a week off, repeat x4.
It is..'doa-ble' -I would say. It isn't great fun, that would be a lie. The neuropathy for me is a real pain-this is where you cannot touch anything cold without setting off mad pins and needles. A week after my second infusion, it hasn't faded like it did on the first cycle.
1) Get some nice warm gloves- a few pairs. Wearing them around the house will help.
2) Follow the regime exactly as to when and how to take each pill.
3) Keep a note of what he eats-I discovered that my fondness for tangerines was making me feel nauseous.
Most of all, accept that this is a short time period in your lives so endure all of it to best maximise your chances. Good luck!
Hi Nevermind ,
Thank you for the tips. He was uncomfortable during the infusion in his arm only saying that it felt cold and tingly which became very sore by the end. Slept well but this morning was when the neuropathy kicked in. He couldn’t touch anything without the pins n needles.
Heat bags to the rescue for the rest of the day improved things enormously so that now it’s eased A LOT !!
A pair of cotton gloves helped too & enabled him to do things around the house. Glad you mentioned about noting food - I’ve been keeping a diary with all his medications and symptoms and I’ll add food to it too!
I’m so surprised and relieved that this first infusion hasn’t floored him.
My experience of Cancer and chemo before this was not good - I lost both my parents to it 21 & 9 years ago and both were absolutely wiped out by the treatment.
Good luck with the rest of your treatment and keep posting - if anything helps just one person that will be enough for me
B x
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