MRI showed metastases on liver

Thanks.

Got to stay strong until Thursday 

 Cheekkat 

I had chemo that made me lose my hair. The charity cancerhaircare.co.uk was very helpful and even provided solutions for eyelashes, false fringes, etc that can help protect your eyes and such like as well as how to feel confident in headgear and wigs.

I'd suggest having a look ahead of time as you can avoid same simple pitfalls with their help.

Oh thank you I will.

 Cheekkat you have been through such a lot, it's human to feel utterly defeated, but try and think of all the positive stories of successful treatment.  I don't for a minute think this is easy,  but also don't feel you need to try and struggle alone. Speak to your GP, meds may help you get in a better headspace while you are dealing with all this, or counselling.  Sending a hug x

 Cheekkat 

It’s a horrible wait  . Always here if you need a chat .

All I can say after a very intense two years of treatment mum caught a break and that gave her years of being treatment free to pick her strength up and do some quality living . Although she did have recurrences they slowed down and were less invasive.

Your liver mets are very small . Hold onto that .

After the most intense years of treatment we had her all over Europe . Memories that are cherished now .

Thinking of you ,

Court 

I ve been told that I may need a full body PET scan to see if the cancer has spread elsewhere.

Tbh I hadn't even thought of that possibility and now I feel very doomed.

I am staying with a friend who is currently away on holiday back on sat, I its planned that I move into a lovely house that she has bought as soon as I finish chemo, ( around May 2025) but if I am to live alone I need to be well enough and if I need further surgery the same applies.

I was so hopeful that after chemo I'd be free to start my life again in a new country ( I'm from Scotland originally) and now in Wales.

I had a whole new life ahead of me, now I see that may not happen as I am going to be long term cancer patient.

Hi Cheekkat 

The Per scan is standard protocol . My mum had to get them but I always saw it as a positive thing as though they had a treatment plan in mind and wanted to make sure nothing else was lurking before heading down that route . Her Pet scans never showed up anything the CT scans had not revealed and she went back to surgery after the pet scans .

It is a time of great uncertainty and you want to get to more solid ground but keep those plans in your head . It sounds lovely . 

I am in Scotland . Had a cold but beautiful week but the rain has returned .

Its a toe by toe journey .

Court 

I had PET scans as part of my treatment planning and to restage after radiation and chemo. I never had evidence of metastisis but the doctors were just being thorough. Having the scans didn't mean anything about my prognosis. 

You've had a terrible shock. It will take time to process. Be gentle with yourself but always keep in the back of your mind that you can survive this. You can still have that life you planned. Delayed is not lost forever. 

Sending virtual hugs. 

MDT was today and specialist nurse called me after to discuss the plan...

There is no change to the original plan.

I will start chemo on 28/01 in between times I have been referred to the Hepato/billary oncology team to see what they consider can be done.

My friend the Radiologist says what's likely is ill have 3 chemo cycles and then a CT scan. If the mets are smaller or diminished and therfore progression is ceased then I may get surgery.

However if there is disease progression I won't!!

Therefore doomed ! (As I suspected) 

I've asked to have a face to face appt with my gynae oncologist. as i need to know my prognosis and my stage, also to ask about getting a second opinion and copies of the discussion at the MDT and all my CT and MRI reports plus request to be put forward for trials and immunotherapy.

I shall query too why I have not been scheduled for a full body PET scan. My friend says that's unlikely now.

It's that because I've been written off?

Progression is expected and there's not much hope left.

I am even further aghast.

Hi this sounds like a few conversations I've had over my appointments with doctors. 

Personally, the two different rounds of chemo I had, capcitabine/ ..... Can't recall what it was called to be honest, then folfiri didn't do much, but I had radiotherapy in-between. And that did help. But, no treatment ever shrank my liver mets, the radiotherapy was believed to have kept them steady and slightly shrank the primary bowell tumour. 

Just because they say it's inoperable at the time, doesn't necessarily mean that's forever, it just means us not the best idea to operate right now. There are other treatments, including trials, immunotherapy depending on your particular genetics, a chemo that was passed by NICE just last year for patients that have already had two options of chemo.... There are still many options. 

There's nothing wrong with asking for second opinions, the people treating you are only human, a different doctor or professor somewhere else may have more experience. 

In short, the chemo you have may work and everything will be fine. If Ur doesn't work, you could have radiotherapy, or a different chemo, then go back to scans for surgery after that. 

I know it's overwhelming but it definitely doesn't mean you're doomed at all. Stay hopeful and physically strong to give your body the best chance