Yesterday I had MRI scan of my liver and it's turned out that the suspected haemangiomas are in fact metastases.
I have primary MOC of the ovary and had debulking and CRS and HIPEC at Basingstoke Peritoneal Malignancy Unit were it was considered to initially be appendix cancer.
The cancer is MOC ( Mucinous Ovarian Cancer ) of GI origin.
I was due to start chemotherapy Carboplatin and Pacitaxol on 28/01
I now think this may be changed to a more effective formula if there is one.
My Radiologist, who is my best friend says I may need a biopsy done.
I'm terrified as the last one was agony.
I guess I'll be classed now at stage 4C and terminal.
I m devastated and terrified.
Anyone else here with liver mets ?
What was the treatment and how are you doing
I feel totally doomed.
That's devastating news indeed. I'm so sorry.
Do not give up hope. P
eople will be along who will tell you how they or a loved one did well after a stage 4 diagnosis with liver mets. I've read many of these stories on here.
court is one. (I sure hope I did that link right!)
In the meantime, sending virtual hugs!
Hi Cheekkat, I have stage 4 bowel cancer, with liver and lung mets. I'm fairly new to all this. I was diagnosed on 19th Sept, had surgery on 14th Oct and started chemotherapy on 15th Nov, phew! I am almost halfway through chemotherapy and have an appointment with my oncologist beginning of Feb. I am supposed to be starting immunotherapy for liver. That has been delayed due to finding I have the Braf mutation. There is a lot they can do for the mets. Don't give up hope. I've realised you just have to live in the moment. This is a roller coaster ride you just have to go with the flow.
Thank you for your reply.
I guess I'll have no choice but to go with the flow but it doesn't make the worry less.
I feel doomed.
It doesn't make the worry less. I did get some antidepressants from the doctor, as I was finding it hard to cope. I have sertraline 50mg and it has helped a lot. Sometimes you do need a helping hand. Talk to your macmillan nurses too. They have been amazing for me. Helping to claim pip and blue badge, as well as arranging counselling. People can and do live for years with a stage 4 diagnosis x
I will do that. I currently get SDP for other conditions and I'm over 66 so wouldn't get PIp it would be attendance allowance.
I'll get on to cit advice.
Also my MDT will be Wednesday and I'll have more info by Thursday.
The mets are in two lobes and deep within liver, they are not on the surface.
The macmillan nurses have there own citizens advice people. In some circumstances they will do it for you.
I don't know where my mets are yet, I also have lung mets.
They can do something called ablation, I think, on mets that are deep. They can also operate as the liver can regenerate itself.
Maybe they will save me.
Beginning not to care anymore, been through too much horror and nasty shocks.
Hi, I was diagnosed stage 4 in Jan/Feb 2024. With liver mets. Then further scans showed something in my lungs also.
I have had two different lots of chemo, radiotherapy, which shrank primary tumor and held the liver mets.
Followed my surgery to remove liver mets and ablate one liver met, then bowell surgery to remove primary tumor.
Just a lung scan and a plan for that next.
So, no, stage 4 isn't always the end of things. The liver can regenerate and the proper team can do all sorts to sort the rest out.
It's not easy but hold onto to things and ideas about what you still want to achieve and do in good years to come. One day we will be back to sunbathing on a beach, and hiking through forests.
Please keep going and don't let anyone tell you there's nothing they can do. My liver operation was bearable, took two weeks to be back to having the energy to get back to do some minor DIY. My surgery was open and on the front, the ab muscles were tender so no doing push ups for a while but the hospital physio team had me up and about and walking round the ward two days after the op. I can advise an epidural if they offer it
I had the MOAS in October. Opened up from sternum to pubis to remove the tumour on my ovary and to take our all cancer in my abdomen.
Nothing was found on my liver at the time. These mets are deep within the liver.
Some in each lobe.
I don't think I could do another surgery.
The prospect of being bald from Cheno from 28/01 is bad enough.
Whatever cancer throws your way, we’re right there with you.
We’re here to provide physical, financial and emotional support.
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