Hello everyone
I’m 56 and have been diagnosed with an appendiceal mucocele having been admitted to hospital with suspected appendicitis in early April. A CT scan showed a large mass on my bowel, which cleared following aggressive IV and oral antibiotic treatment over 10 days including 5 days as a hospital Inmate. A colonoscopy confirmed the mass had gone. I then heard nothing so chased up only to be rushed through for an appointment with the colorectal consultant within 3 days of my call to the consultant’s secretary. This then was followed by an appointment for surgery with two weeks of the consultation. 7 days to go….Meanwhile, the wait is difficult and the discomfort from my appendix grows a little every day. However, the wait has helped me to finally realise that this is not classic ‘appendicitis’ but rather a tumour of the appendix. I’m quite anxious about the surgery as I’ve been told they don’t know what to expect to find until they go in. I’ve been warned that I may need a portion of my bowel removed along with the appendix. A portion may turn out to be a third of my bowel. I appreciate all eventualities must be discussed; however, I don’t seem to be able to even consider that this might have a good ending for me. My brother died from pancreatic cancer 4 years ago aged 54 and my dad died of oesophageal cancer aged 60. So it’s hard to not assume the same result for myself! The information I have read go from excellent case studies where all is well to rather grim accounts of debulking surgery due to PMP. What also worries me is that one doctor told me my appendix had been leaking. This appears to not be a good sign with appendiceal mucocele cases with 85% of leaking appendiceal micocele cases being malignant.
Has anyone on here had a similar situation with appendiceal mucocele? I’d love some advice on how to cope with the uncertainty.
Thank you for your reply, Court. It’s good to hear a positive story!
I’ll take a look at the information you shared. 
Hi Lily,
I've just come across your post after searching for mucocele appendix information.
I've just had a colonoscopy, in which they found a bulging appendix and so I've been fastracked for a CT in 2 days, for a suspected mucocele appendix. The person doing my colonoscopy was a consultant surgeon, so I'm assuming they know what they're looking at. ( In fact they seemed very excited to have found it 
)
I have a lot of right sided pain which is getting worse daily, and a palpable lump in my right lower pelvic area.
I do think I've probably had this for 18 months minimum, due to symptoms and I've had a high positive FIT test, which doesn't reassure me.
I've also had some swelling noted on my fallopian tube during an ultrasound, so I'm wondering if the two are possibly connected.
It's such a scary time, especially as my family history isn't great and I'm just being sent from one test to another without any real explanation as to what is going on and I'm struggling with the pain now.
I hope that you had a good outcome, and you're doing great now.
Good morning Sooey
I’m pleased you found my post and I am sorry to hear that you’re experiencing this health situation. It is such a worrying time when you’re faced with test after test. I’m happy to report that after months of tests, then surgery and what felt like a forever wait, the results came back that the tumour was non-cancerous. The surgeon found several ‘worrying’ areas around the appendix so he took biopsies but all was well. I do hope that everything is resolved for you soon. It took me several months to feel back to normal again. But it feels like a lifetime ago now
if you can, try to resist Googling… I think I actually increased my concerns rather than reassured myself by reading lots of articles and research papers. The medical professionals do know what they’re doing, as you say. I found using guided meditations and square breathing on a daily basis helped enormously as did keeping in touch with friends and trying to sit in the garden for a little bit every day.
I wish you every success with the outcome! Do let the community know how you get on. All will be well.
Lily x
Thanks so much for your fast and encouraging reply.
I will try to avoid Google from now on
Kindest regards
Sooey x
