Mums diagnosis of appendix cancer- goblet cell, looking for advice

https://community.macmillan.org.uk/cancer_types/bowel-colon-rectum-cancer-forum/f/diagnosis/222602/goblet-cell-carcinoma-treatment---any-experience-out-there
Hi LozB87

Welcome to the forum . I have linked in another thread you might find helpful as it has another link to some of the thought processes behind rarer cancer treatment including a reference to Goblet cell if I remember right .

It is mentioned from time to time on the forum . If you click on my user name you can see my mum has had a few bumps along the way . Twice she had chemotherapy first then went back to the MDT meeting and surgery was deemed possible at that juncture . It was not mentioned prior to that until they had a feel for how she was responding to chemotherapy.

Most people that come through here have chemotherapy before Hipec surgery . 
Hope that gives you a little encouragement. I have found if they can add other options in they try to . Your mum can always have a second opinion at any point in time .

Send her our best wishes .

Court 

Hi court- thank you so much for this, that’s really helpful and reassuring. 
I do hope your Mum is doing ok currently too.. 

My mum is in agony each day, it’s really frustrating just waiting around for appointments, we fear it’s worsening and it’ll be too late by the time they actually get round to seeing her and starting this new chemo regime. I feel so powerless. I will have a read on some of the links you have shared now. Thanks again xx

Hi ,

I would definitely get onto her team about better pain control . Hopefully chemotherapy will lessen her pain levels when she gets onto it .

Its a horrible feeling not being able to take some of this away from her .

You could email the oncologist secretary to find out a start date .

Take care ,

Court 

HI LozB87,
I'm sorry to read about your mum's diagnosis. You will probably find more in common with the member of the PMP forum than this one - https://community.macmillan.org.uk/cancer_types/pseudomyxoma-peritonei-forum

I too was misdiagnosed with ovarian cancer before getting a PMP diagnosis which originated with an appendix tumour. I didn't have a goblet cell adenocarcinoma diagnosis but PMP and appendix cancers are treated in the same two hospitals - The Christie and Basingstoke (on the same wards).

Angela 

Hi I've just read this after searching the site as my mam was diagnosed with ovarian cancer a few weeks ago. However once they did biopsies they discovered that wasn't the primary site. On investigation they are confident it is in her appendix. I just wondered (obviously only if you feel comfortable telling me) what treatment you had?

Thank you

Hi Pinkflower, 

im sorry for the delay, and sorry to hear that your lovely mum is going through this. 
sadly, my mum didn’t get the chance of treatment specific for appendix cancer. She had fought ovarian cancer for 18 months and was NED, however the other primary cancer that was found in her debulking surgery (the appendix) returned. Sadly the Christie left her for 10 weeks with no follow up and it was too late. The plan was to start her on chemo, then possibly surgery with HIPEC. But having been left so long it spread. My understanding is that for appendix cancer it will usually be surgery with HIPEC, then chemo afterwards. Ensure you fight and don’t let delays / backlogs delay her treatment. Wishing you all the best xxxxx Laura  

Hi Laura. I am so very sorry about your mum. It's still good to hear from others going through similar & I'll definitely chase people up when we feel we need too. Thank you for replying & hope you're doing as OK as possible xx

Thank you pink flower. Keep fighting for her. Don’t stop. Xxxxx

Just seen this, sorry. I had a hysterectomy first (everything, womb, tubes, ovaries, cervix) at my local university hospital and then that was followed with cytoreductive surgery and HIPEC at Basingstoke hospital. Hope that helps? Hope you and your mam are okay.