Hi Everyone!
Had a really Sh***y week! Who knew we would finish the week on complete low?? I've decided that I have let this take me over and I shouldn't .Hubby got results of his scan on Tuesday and the B*****d that is Cancer is back!! I honestly cannot function or focus on anything other than this. It has taken me back to last June just before he got his original cancer diagnosis in July !st Was looking forward to celebrating this date next week as being the date he got diagnosed and beat it 6 months later but that's not going to happen now it seems! For the last 3 days I have not been able to function or focus on anything other than this! and have been mainly going through the last couple days on `auto pilot`. The last couple of mornings I have found it really hard to get up and face the day and just feel I want to pull the duvet over my head and hope it all goes away. I have to force myself to eat because I my stomach is constantly doing somersaults and then don't enjoy my food and I break down at the least wee thing. Basically I'm a mess!! I know this sounds awful and I'm making it all about me when it's not but I need to get out someway and coming on here helps. Hubby's bowel cancer is back and its in his stomach lining and part of his pelvis think its called the piroteneum?? So much information about it being advanced, mastisised etc and this is making me sick I think because It says there is a shorter life span with this although his surgeon says his tumour is `slow growing` and when I read about this they are called carcinoid tumours and are classed as `low grade` so i'm reading a lot of contradicting information. His surgeon says his life span is `years into the future` and then you read things that tell you different so who do you believe?? We don't see his oncologist until the 7th July which at the moment seems like a lifetime away and what I worry about is the longer its taking to see him his cancer could spread but then I think well if they want to see him then the cancer can't be that serious. Then there's all this stuff about cancer grading etc all that doctor/science speak that I don't understand really. We've decided to tell our son and his partner after we see the oncologist because hopefully then we will have a clearer picture of what's to happen regarding treatment. My son didn't take it too great the first time so god knows how he'll cope this time. He ran and told all his friends on Facebook/Instagram when his dad n I were trying to keep it private so we had to end up telling the rest of the family. I have an older sister (71) who has learning difficulties and she just cannot comprehend the seriousness of it. She had breast cancer 3 years ago and beat it and she's still clear but I feel she thought this was great because she was getting attention because she suffers from bouts of depression and anxiety and has epilepsy and tends to make up stories to get attention. My dad was her carer until he passed away 10 years ago. (metastatic lung cancer so you see why I fear that word `metastatic`) and I got her a move into sheltered housing. Mum had bowel cancer too and passed away 26 years ago but back then they don't have all the new technologies they have these days. So cancer has been no friend of mine over the years and now I'm scared its going to take my husband from me and I'm scared, confused, anxious and all sorts going on.
Hi PattyK. It’s so easy to let it take over your life isn’t it and every advert on telly seems to be for cancer…… Unfortunately there’s no exact answer to a lot of the questions that we’d like answers to as everyone reacts differently to treatment. Yes there are various stats out there but you can’t use them as a measure as there is no way of knowing people’s ages when diagnosed, other health problems, new treatment options etc.
Ive attached a link to a booklet from the Bowel cancer uk board which covers peritoneum mets - apologies if you’ve seen it already
https://bowelcancerorguk.s3.amazonaws.com/Publications/TreatingAdvancedBowelCancer_BowelCancerUK.pdf
Please ring the support desk on here and have a chat with them? They’re available 7 days a week from 8-8 on 0808 808 00 00
He’s beaten this before and will need your support to do it again. Try not to google - the consultant will give you all the information that’s relevant to your hubby - you could write down the contradicting information that you’ve read then clarify it at the meeting - focus on the facts and that the consultant says he’s got a lot of years ahead of him - don’t waste those years by worrying about things that’s you can’t control or might not even be relevant
Take care
Karen x
I've had some good support already here from the online forum. connected with a lady who's husband is going through the problems as mine so it'll be good to share experiences. Hope to connect with some more like minded people. A chap from Glasgow same as me has an 80 year old mother who has been stage 4 and recovered so hope for hubby at 68 years old. Good to keep connecting I suppose. Thanks again.
Vicky.
Glad it’s helped. If you want to chat to someone privately then you can add them as a friend - click on their name then on the ‘connect’ button and that will send them a friend request. You can then message each other without it appearing on the board. Ps If the chap from Glasgow that you’re talking about is Court then she’s a lady! X
Sorry sent that before finishing. Yes SHE has been very inspirational in what she has gone through with her mum. So there is hope for us all. I'm just constantly looking on the negative in that I'm looking at life in the future `without Jay`He's really all I have we sort of `have each other` if you get my meaning. 39 years together 36 of those married I think says something. I have my older sister but as I said she has learning difficulties and she would not be a great support. and Jay has said in the past I can't actually do `siterly things` with her and it's like a reverse she's the younger and I'm the older one. I have my son too but he has his own wee family now and they have their own lives to be getting on with. See, there I go again. Jay hasn't even started any treatment options yet n i've got him `in his box`. That information sent on bowel cancer though was really interesting and it is interesting to see just how many treatments are out there for cancer now and if not to cure it to keep it stabalised or at bay and even hopefully an operation where at one point this was not an option. He's great just now you wouldn't think anything was wrong with him and he's his normal self but he's the one thats said he doesn't want treated any differently and doesn't want `mollycoddled` etc. His eating habits have increased but I don't know if this is just him being him or if its in his mind `to hell with it` might as well just eat. He said this last week `I've nothing to lose now` whats the difference and that really scared me! It sounded that he was just going to give up already. Great I can come on here when I have a `wee wobble` which seems to be constant right now. Take Care Everyone!
Vicky x
PattyKI deliberately didn’t tag her in but she wouldn’t have minded - it’s sometimes hard to tell from people’s user names what gender they are! You can come on here and wobble all you like. I can see your hubby’s point of view - there’s people who are non drinkers, non smoking vegan fitness freaks who still get cancer so it’s easy to think ‘what’s the point of healthy eating anyway’ and to be honest it’s often good to put a few pounds on before starting chemo as he may find he loses some then.
I found people would apologise to me for moaning about having a cold when ‘you are going through so much worse’ but I wanted to be treated normally and go out for coffee and chats without it all being about the cancer. I was lucky to have minimal side effects with my chemo so I carried on working part-time in my office job - again because it was a distraction and made me feel normal. Was I in denial? Maybe to a certain extent but I didn’t want to lie on the settee with my husband running around after me unless I really had to!
Do you also post or read the Bowel Cancer UK Board? There’s a lot of people on there living with cancer who have had 100+ chemos and people who’ve been at stage 4 for years but they are getting on with normal lives with the chemo keeping things stable and who knows what treatment will be available in the future.
Please don’t let this hang over you like a black cloud and spoil the years ahead - it doesn’t sound like Jay has given up so pull on those big girl pants and when they start to slip a bit - come on here for a rant/cry/scream or just a virtual hug from a stranger - you are a strong team and can do this
Take care
Karen x
Can anyone tell me if your surgeon says your cancer is `slow growing` is it possible to spread while waiting for an appointment with an oncologist if it is a few weeks away. Asked this before with my sister when she was waiting to see her oncologist 3 years ago for breast cancer treatment and they said no. If it had been there already it was very unlikely to spread further in the space of 2 or 3 weeks and that her cancer was as they said `confined` though I now know as with Jay's first cancer diagnosis it means localised in the one area. Don't know about Jays new diagnosis just that its in his stomach lining and in a part of his pelvis so don't know if this is what they call `local recurrence` or `regional recurrence` but it will probably be known as `secondary` but reading the information it will still be known as `bowel cancer`.
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