4 years fighting terminal bowl cancer. Doctors have given up. What can I do.

https://bowelcancerorguk.s3.amazonaws.com/Publications/TreatingAdvancedBowelCancer_Bowel_Cancer_UK.pdf

Hi 

Sorry to hear about your concerns regarding potential future treatment . I have copied in Bowel cancer U.K. s latest info on managing stage 4 disease , most of which you will be familiar with but might give you some information regarding chemo options .

Not sure about your cell information but have you investigated Immunotherapy to see if that’s an option ?

Some questions spring to mind ! Have you had a liver resection in the past or know which lobes / tumour sizes that are currently affected ? For me I like to know that information then look at criteria for resection , radio frequency ablation etc and see if there is a potential option from an informed position . 

The other aspect I like to know , who is making the decisions at the MDT meeting . Was a urologist present and able to give a specialist opinion on your kidney and any potential surgical options ?  Is it a centre of clinical excellence that has said there is no further treatment options for your liver ? You are entitled to a second opinion and it might be worthwhile seeking some more information. Often it can be done by scan review if you have recent ones . Or if you are thinking chemotherapy options by a fresh set of eyes from another oncologist. All of this may in fact have been covered but it’s worth while making sure if you are concerned . It also gives you some inroads to open the dialogue with your team as it is a hard one to suggest you might want another set of eyes on it . But it sometimes can throw up other options . 

You also might like to link up with bowel cancer U.K. they have umbrella support groups for stage 4 patients where they can share more information and get information on how others are managing their condition . They would point you in the right direction . 
We have a helpline here 0808 808 0000. They may also be able to give you some guidance on how to move forward with your care .

Take care ,

Court 

PS . Who would want me for a daughter ! If you click on my user name you can read my mum’s story . 11 1/2 years as a stage 4 patients and a couple of tricky junctions to negotiate along the way .

Hi Court,  thanks for that information. It is very helpful. Up until now I have had very limited support from my doctors. The nurses have been great , but the doctors are constantly evasive , so now I have some question to ask them.

That is so disappointing to hear as there are some tricky choices as it is . My mum has had a brilliant oncologist for around eight years . She is fresh and engaged . However we have also navigated more choppy waters too and had some uncomfortable choices to make . But we found it beneficial to get all the information on the table directly from the surgeons etc then you get a better feel for what has potential.

I wish you the very best .

Court