About scans

  • 14 replies
  • 111 subscribers
  • 2676 views

Sorry to ask this question again, but I had ct and mri scans with very good response. I been told I’ve got to have another scan in a month. I asked my nurse she said to see if any more shrinkage .I asked how much it had shrunk she said she don’t know I wasn’t in the meeting. Am I wrong to ask these questions,or what comes next. So my telephone consultation has been moved from thr 30th of Dec to the 13 of Jan. is it wrong to ask these questions. I just want to know if I need surgery.

  • No, it's not wrong to ask these questions. Ask till you get answers!!

    Can you get phone consultation moved back to 30 Dec or ask consultants secretary to pass your questions to him in meantime. I email her with questions if I'm not gonna see/ speak to him for a while. to get answers!

    Fear of the unknown is the worst thing. Once we know what we're facing, we find the strength to deal with it.
  • Hello Buttercup1, thank you for replying. I did read your profile and you are amazing. I think I’m so anxious as my sister is so unwell. I think they moved my consultation back because they want to wait and see what the other scan says but I haven’t got the appointment for that yet. Take care, when you get your scan results do they tell you quickly. The nurse who phoned me wasn’t my nurse my one was on holiday. Is her reply I don’t know I wasn’t in the meeting when I asked her about shrinkage. I just thought what is the point of phoning her.sorry for the moaning. Trying to be patient 

  • Well @nelly1955 I always got my scan results within 2 weeks, as I used to book the appointments accordingly at Mt Vernon. Since changing to Lister, they're a bit haphazard. New oncologist as well,  who doesn't seem to have worked out I don't want to wait too long for results.

    Btw, I've got kidney cancer not bowel cancer. I just happened to see your post. I will CC w who's this group's champ.

    There's such a thing referred to on the forum as " scanxiety". I still get it 15 years after having my op.

    Sorry to hear your sister's also unwell. No wonder you're feeling impatient about scan results etc 

    .

    Fear of the unknown is the worst thing. Once we know what we're facing, we find the strength to deal with it.
  • Hi ButtercupO1, I heard from the doctor who told me an excellent response most of the cancer has gone. They pushed my appointment for the 30 th to the 13 of January and she told me I had another mri scan on the 6 th to see if it’s all gone if not I might have to have surgery to get the rest out. Just wanted to thank you for your reply. I’m so glad I don’t have to wait till January to find out.

  • Yes my sister is unwell and I will just tell her I won’t know for a while yet, she would have been one of the first I  would have told. It’s all a bit bitter sweet take care love and kind ness to us all

  • FormerMember
    FormerMember

    Im just newly diagnosed so not sure on much at the moment but you ask all the questions that you need to, you are never wrong. 

    Im not being disrespectful but your nurse should know and if she doesn't then she needs to talk to your consultant. 

    I wish you all the luck 

  • Yay 

    Good luck re your MRI on 6 Jan.

    Love n hugs to you n your sister xx

    Fear of the unknown is the worst thing. Once we know what we're facing, we find the strength to deal with it.
  • Thank you Buttercup01 thank you for your love n hugs ,and I’m sending love and hugs back to you. I agree the fear of the unknown and the waiting. Let’s hope for a better year next year

  • I do think I get on her nerves I don’t speak to her much. I think it’s reassurance I need and I have to be desperate before I talk to her. Sometimes you have to ask again because sometimes you might not take it all in the first time. Maybe I’m being harsh.thank you Hope79. Wishing you well.

  • FormerMember
    FormerMember in reply to Nelly1955

    Hi Nelly1955

    So happy for you that you have had a good response to your treatment and that you have good shrinkage. So glad you have had good news before Christmas.

    I am so so sorry to hear about your sister and that she is so poorly. both of my sisters have also had cancer. We are waiting or my oldest sister to have her 1st years scan. 

    I understand what you mean about your results being bittersweet Nelly, but I am sure she will be happy for you, and i also see why you have had such anxieties.

    Take care Nelly1955, have a great Christmas, I will check in here on Christmas day and say hi to you all.

    Lots of love

    xxx