No hope

Hello Greengirl,  Well i for one hope you are very wrong about us with bone mets not living for years. I have bone mets and was diagnosed in March 2020. I think you need to look a little deeper there are many people on here who have been living with this condition for years, someone i know lived with this form of cancer for over 10 years.As for therapies that work i am a little confused to what you mean. Anyone with bone mets are on some form of chemotherapy for life as we sit in the incurable camp and there is no cure, but there are lots of treatments available to us. I presume by you negativity you are newly diagnosed please dont give up there is a lot that can be done and new drugs are coming on the market all the time keep well and safe xx

Hi  Greengirl i have read what you wrote thank you, but this site sometimes plays up and i cant find it again to reply to you so i will add you as a friend and we can have a chat in private its easier to keep up with each others posts and they dont get lost in the forum please dont feel you have to accept the friends request its just i am an old hand at cancer lol

Hi Greengirl,

I was diagnosed in July 2019 but first felt it and it was visible in March 2018.  I have had radiotherapy to my spine mainly and various drugs along with Denosumab. What is affecting my life today is not bone mets but Covid-19 being out there. I love every day I have with my family and get out into nature as much as possible. I found it difficult to be positive early on but I have had time to get used to it. 

Hope this helps. 

DiAne***

Hi Greengirl

Take hope from these other replies. I know it’s easy to say but a positive attitude is essential for staying well. You will have bad patches but they should pass, provided you stay in touch with your healthcare team and take their advice. 
Drink water, exercise a bit and rest both your mind and body. 
My contact-nurse’s catchphrase is to never let cancer define you. You need to fight it and control it, but don’t place it at the centre of your world. 
I had a kidney removed 4 years ago, then three years clear. then mets showed up on my spine. I’ve been on Sutent 14 months and it’s still working. Many patients at my clinic (Belfast) have kept fighting for years on similar treatment. It’s an active area of research and more refined medications are in the pipeline. 
Hope this helps

Stay strong

Alastair