Secondary bone cancer

@Bubbles19671  I am so sorry that you have not had a reply yet, Bubbles. As to your wondering how long you have - there is no way of knowing. It could well be years now that it has been discovered and is being treated - I was diagnosed with metastatic breast cancer in lymph, liver and bones two years ago and I had already been going to the GP complaining about the pain/worrying my cancer had returned for two years prior to that. So that's four years for me and I show no signs of stopping yet. The treatments today are very good indeed - many of us have cancer that is "not curable but controllable". The oncologists are very skilled at making sure that cancer sits itself down and shuts TFU for a good long time.

I know it seems very, very hard to imagine right now but in a few months time, you will hardly think about the cancer until the six monthly CT/appointment comes around. It really does just become another condition like migraines or arthritis.  The first oncologist I had this time around told me that and I didn't believe him, but now I do. He told me has had women go on for years on the hormone therapies and when they fail, there are usually other chemos and radios and things that can be done to prolong and improve life. 

Have a read through this thread, if you haven't already:  https://community.macmillan.org.uk/cancer_types/breast-secondary-cancer-forum/f/breast-secondary-cancer-forum/186433/positive-secondary-breast-cancer-stories/1527843#1527843 

It's full of positive stories - women like me and you who are more than 17 years past diagnosis. In ten years time, they are going to be putting my name and your name on that thread. 

Thanks MooCoo 

1. I was in the same situation as you been at the doctor for both times complaining about the pain so yeah I'm probably about 4 years this time round. Thanks for answering me I do feel alot more positive than I did. And your right they will be putting our names on the threads thanks again

I'm so glad you feel a little more positive. It's like being hit with a sledge hammer, isn't it, when they tell you but certainly for me, it got easier and easier, especially as the treatment began to work and I began to feel less pain. .I just kept telling myself "you can't die of a broken bone" . As long as we resist breaking our necks, we should be OK for years yet. 

Have you had a look around the other groups yet?  This one doesn't seem to get much activity, sadly. There are other groups that are more active than this one. 

Here's one for breast cancer: https://community.macmillan.org.uk/cancer_types/breast-cancer-forum 

I'm guessing that the numbers in your name are a birthday? If so, you are six days older than me and so here's one for the under-50's:  https://community.macmillan.org.uk/cancer_experiences/breast-cancer-for-the-under-50s-forum

Secondary breast cancer: https://community.macmillan.org.uk/cancer_types/breast-secondary-cancer-forum

 Incurable: https://community.macmillan.org.uk/cancer_experiences/living-with-incurable-cancer-forum

There's quite a few more - click on groups on the top of the page and have a look around.  There's always someone around to chat and share the load - there's even a thread for random chatter in the middle of the night for those who can't sleep!