Could this be secondary bone cancer?

FormerMember
FormerMember
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My husband, aged 66, who is in remission from locally advanced prostate cancer (diagnosed in 2016), has started to complain of neck and shoulder pain.  His neck has become very stiff and he is unable to turn his head without extreme discomfort.  So far he has been reluctant to go to his GP or to contact his oncology nurse because when he went into remission in March 2018 the oncology department referred him to urology and he doesn't think he is eligible to have an oncology nurse.  Without wishing to alarm him, I think he should be in touch with the hospital for an urgent PSA test to determine if his levels are raised and to check in with a Consultant (or one of the team).

My father in law died aged 80 just 6 weeks after being diagnosed with secondary cancer in his neck without a primary cancer ever being found yet he had had prostate problems (never diagnosed with cancer though) for a few years.

I am feeling very worried that I could lose my husband before he ever sees a medic.  Can you please give me some advice or reassurance?  I know bone cancer doesn't necessarily kill as my sister is living with it after successfully recovering from Stage 4 breast cancer but I'm terrified and don't want to waste time just in case.  Thank you.

  • Heya Chilli, 

    So sorry you're going through this at the moment. 

    I'd like to just clear up some language before going any further. Whatever is going on, if it is spread from his prostate cancer, it's not actually bone cancer. It would be metastatic prostate cancer. Bone cancer is a whole other beast that's not a pleasant thing. It can get very confusing when folks talk about bone cancer.

    The best thing for your husband would be to call his GP tomorrow morning and ask for an appointment. As you say, if this is bone mets, then the sooner it is dealt with the better in the long run. 

    However, there are plenty of other things it could be. Frozen shoulder, trapped nerve, pulled muscle, repetitive strain, to name just a few off the top of my head. A GP will be able to determine, or rule out, lots of things. And by not involving the nurse, there's no worries about her being removed from his care.

    So either get him to make the call or make it yourself. Not going to the doctor isn't going to make anything better, and in fact could make things quite a bit worse! 

    Good luck! 

    Lass

    Xx

    I have no medical training, everything I post is an opinion or educated guess. It is not medical advice.

  • Yes, best to get it checked out. Particularly with a history of cancer. I still have a breast cancer nurse specialist who I can contact about any concerns. 

    I don’t know what would be considered the official proper route for referral but these days I ring everyone on my list and see who can see me, when and where. 

    What about telephoning Macmillan nurse tomorrow for advice. My nearest hospital has it’s own centre. They were helpful for me. 

    DiAne X

  • FormerMember
    FormerMember in reply to DiAne550

    Thank you DiAne550.  I will ring myself in the morning and go from there.

    Chillipurple xxx

  • FormerMember
    FormerMember in reply to Lass

    Thank you Lass,

    I am glad I am not going mad!  I will endeavour to get my husband to call tomorrow if not I'll ring the GP or a Macmillan nurse myself to see if I can get the ball rolling.

    Chillipurple xxx

  • Do you have a Macmillan nurse assigned to him? If not, they won't be able to do anything to help as they won't have his records or anything. 

    Lass

    Xx

    I have no medical training, everything I post is an opinion or educated guess. It is not medical advice.

  • You are most welcome. 

    Love your user name. Purple is one of my fav colours at the moment and chilli is so warm. Guess I am feeling cool at the moment Slight smile

    DiAne X

  • FormerMember
    FormerMember in reply to Lass

    Hi Lass, 

    I'm pleased to say my husband does have a Clinical Nurse Specialist assigned to him and he's emailed her this morning. I'd have preferred he ring her but it's his way. I'll let you know how he gets on. 

    Many thanks, 

    Chillipurple

  • Hi Chillipurple,

    Pleased your husband still has a specialist nurse involved.

    DiAne550 x