Anxious

Hello Ellieellie,

I can completely empathise.  I cleared out my wardrobe the first week I was diagnosed, closed down or transferred my bank accounts, added husband to my pension as a beneficiary, got a will, arranged a trust fund for my daughter and then some.

 It took something to go to a funeral.  Something I don’t think I have.  

I haven’t heard of Palbociclib and I hate and despair when They put money first.  I could go on but it isn’t the place.

I have just had my first Denosumab this pm.  Due to start Faslodex and Abemaciclib on Thursday.  

Today, I met with one of the oncologists.  I asked for a PET scan which was refused.  I asked for a repeated CT scan.  Which she agreed to because I now have swollen lymph nodes.  I am looking for a second opinion on my diagnosis.

I try to keep positive.  Mind over matter type of thing.  I started to do meditation some guided (from an app) some just me doing it.  I have been visualising travelling around my body (like in the movie Fantastic Voyage,I think it was, had Raquel Welsh in it) except I don’t use a ship.  I see the cancer and zap it or if I see it as a colour I change it to what I feel is a healthy colour or anything that feels right.  Maybe sounds whacky but it helps.

The Badger ointment that a member uses arrived so I will try it tonight and let you know.  I am also using CBD oil at 5% which has help with the bone pain so I have not needed to use anything other than paracetamol recently.  

I will be here for a while longer if you need to off load.

DiAne x

Hi Ellieellie

I started on palbociclib and Denosumab yesturday. I did not realise that funding for the drugs can be withdrawn. Only thought they took us off the drugs if they were not working. I have heard that treatment depends on your postcode, which is diabolical. 

I have started listening to guided meditation apps to help me sleep which seems to be working a little. My cancer is breast with wide spread in the bones, back, sternum, clavicle and ribs. Expect from ribs which has pathological fractures the pain in back which has been there for nearly 12 months has stopped. I have been miss diagnosed for 3 years and have only known my diagnosis for 4 weeks in bones and 2 weeks in breast.  3 mamagrams normal, no lumps etc. only found behind nipple after biopsy.

I have been told I'm not going anywhere soon by oncologist so I'm holding him to that. I'm 54 and never saw my life like this also. It sucks.

Have a cry it does wonders for you, hit something feels even better.  I lost both my husband and father to cancer but have not been to a funeral since diagnosis so can only imagine the thoughts going through your mind. 

We can be strong for each other on this site when one of us has a bad day. 

Thinking of you

xxx