Breast cancer thats gone to my rib bone

Hey Lea76, 

Your head must be spinning right now, I also have metastatic breast cancer that is in my spine and a few other places within my bones, from what I’ve been told this cancer is incurable but it doesn’t mean to say they can’t treat it or shrink it and keep it at bay for a long time!!! 

I’m taking oral chemo that I take at home and I’m doing really well I’ve had some radiotherapy to help with the pain and after a flare up (made the pain more intense) it settled down and I’m back to living a full life, all of us on here are in the same boat and have been where you are and have been on the site for advice, a chat or just a moan when we have a down day but we are here for each other, we can be quite a quiet group as we are all busy living our lives  but Lea, please message whenever you need some advice not question is a stupid one, and one of us will pop on and answer, write all your questions down before you see your oncologist and take someone with you who will listen to the replies because I your anxious (and you will be it’s normal) they can write answers down or remember to be able to tell you afterwards. 

Giod luck and let me know how you get on

Jo xxx 

Hi Joe

Thankyou for your reply I'm completely devastated I'm only 42 and all my family is heartbroken especially my teenage son thankyou so much for your advice I see my oncologist Wednesday il let you know how I get on xx

Hi Lea

Its frightening, we all have bee  there with the diagnosis. It is unfortunately incurable but it is treatable. There are many drugs available and treatments. It's just getting the mix right which your Oncologist  will sort. You are not going to die tomorrow or any time soon which is what I think we all thought at the beginning.  It will take time to come to terms with it.  It took me quite a while, lots of tears and sadness.  Dont bottle up your feelings,  Express them as it will help you to come to terms with this.

We are here to answer at any time.  We have been where you are now.  You will find your way in time. It's all too new for you and your family.  I wont say keep strong because I hated that when people said that to me. Just be hopeful and live for today and deal with tomorrow when it  comes and come it will along with many more.x

Hi Ellie thankyou for your kind positive words they help so much iv only been using this site 2 days and already it has helped me I cannot stop crying but at the same time weirdly I'm not scared justsad for my husband and 3 kids that's the worst bit.I hope I do stick around for a while but have no idea how long it says on my papers that I have a preview for cemotherapy on Wednesday and full top o toe ct booked for Wednesday too don't really understand but only one more day to wait hope you are feeling ok xx

Hi Lea

With the ct scan they will probably inject you with a dye which will show up where the tumours are. I have just had my fourth one a few weeks ago. Be prepared for the feeling that you want to pee after they inject you. You won't though.   You may find that they wish to do a biopsy as well in the future.  They did with me.  I so understand what you say about your family. You are grieving for a future stolen from you.  You will get to a good place mentally but it will take time.  It took me a year.   Just remember we are still here and so will you be. Let us know how you get on xx

Hello Ellieellie, I find it so helpful to read your comments. They give me hope . You come across as knowing exactly how to deal with this difficult situation. I am sure it took you along time. You add so much positivity here.

Hello

Thank you. I am glad to be of any help. It's not an easy situation for any of us. Nobody wants a cancer diagnosis.  All we can do is help and support each other through it and hopefully have some laughs and not all tears. Life is for living so we should all do our damnest to live what we have left. Hope you are as well as you can be. You are not alone on this site xx

Thanks very much. This attitude is the right one to have which takes time to get to but I am working my hardest to get there. Thanks for your support.

Thanks very much. This attitude is the right one to have which takes time to get to but I am working my hardest to get there. Thanks for your support.