Bone Mets

  • 3 replies
  • 3 subscribers

Hello all

I just want to ask what is your experience of the treatments for bone Mets such a xgeva, zometa etc, please?

Any information will be much appreciated.



  • Hey Bluesky,

    I'm afraid I've no experience of those drugs as my type of cancer is treated differently, even if it's in the bones.

    However I just wanted to say hello and welcome you to the group.



    I have no medical training, everything I post is an opinion or educated guess. It is not medical advice.

  • FormerMember
    FormerMember in reply to Lass

    Hi Lass

    Thanks for your welcome message.


  • FormerMember
    FormerMember in reply to FormerMember

    Hi Bluesky

    I have just joined this group in the hope of finding an answer to a Zometa question. I’ve been on a monthly infusion for two and a half years for kidney met in my clavicle. It seems to be working well for me and I’ve had some bone regrowth around a tumour that had broken through .

    i experienced the flu like symptoms and bone pain when I first had it, each time for a few days after the infusion, for the first few months. I suddenly realised around 5 to 6 months in that all of the side effects had just gone and now I have it every month without even thinking about it. For me the infusion itself is only 15 minutes and I’m normally in and out in about 40 minutes by the time my obs are done my line goes in it runs and the line comes out again  

    hope that’s useful!