Newly diagnosed sacral Chordoma patient

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Hi,

Decisions decisions. Just been diagnosed with a sacral Chordoma and now need to make a decision on treatment - surgery or proton beam therapy. Not a decision I was expecting to make the year I turned 50. 
Need to ensure the decison I make is well informed and so would be interested to hear anyone’s experiences of successful or unsuccessful treatment they’ve had on a sacral Chordoma. 

With thanks Blush

  • Hi  and a very warm welcome to the online community which I hope you'll find is both an informative and supportive place to be.

    I'm not a member of this forum but noticed that your post hadn't had any replies yet. Responding to you will 'bump' it back to the top of the discussion list again.

    While you're waiting for replies, it would be great if you could put something about your diagnosis and treatment to date into your profile as it really helps others when replying to you and also when looking for someone on a similar pathway. It also means that you don't have to keep repeating yourself. To do this click on your username and then select 'Profile'. You can amend it at any time and if you're not sure what to write you can take a look at mine by clicking on my username.

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