Just diagnosed with Osteosarcoma in my jaw

Hi

My cancer is different to yours and we all have different journeys.  I had breast cancer last year and now secondary breast cancer in my spine.

Just wanted to say hi and that there is lots of support on here in the different forums.  There doesn’t seem to be much activity on this particular one though.

K 

Hello I am new to this forum. My name is Shelly, and have just moved to Mid wales from the Midlands. Your post stood out as to me straight away!!! I was also diagnosed with osteosarcoma to the lower jaw and underwent surgery at Queen Elizabeth hospital in Birmingham in 2019. You may have the same consultant as myself? I had Chemotherapy first and then surgery. They removed  bone from my leg to reconstruct the lower jaw. 
please any questions add on here. Would also be happy to provide my number 

Hi ladies. Do either of you have any updates? May I ask your initial symptoms please? X

Hi, I had surgery in 2019.. following being diagnosed with osteosarcoma to the lower jaw.. they used bone from my leg to rebuild the jaw.. 

The only symptom I had was a lump to the lower jaw, underneath my tongue, which was not painful. xx 

So have you been cancer free since 2019? 

may I ask how long you had the lump for before  getting it checked out? And how big it was roughly? 

I’ve got a lump on my lower outer jaw at the moment and have referred for urgent X-ray under the sarcoma 2 week wait x

Hi yes I’ve been cancer free since 2019. 
I felt the lump over a few months underneath my tongue, on the lower jaw.. one day I pulled my bottom lip down and saw a large lump on the gum line. The o my way they can diagnose sarcoma is by doing a biopsy. I had X rays and a CT scan and it only showed ‘a shadow’ they can’t tell what it is without removing a small segment. 
which hospital are you been seen at?

Hi, 

I have just been diagnosed with the same cancer in the jaw and about to start chemo tomorrow. It gives me great hope that somebody has gone through this and come out the other end well. Sorry to ask but did you also have MAP chemo? 

Hi.. gosh sorry to hear you are going through this f through this.. 

I'm not sure what cheo I had, other than it being high doses!!! 

feel free to add me and I can answer any queries you may have x

Hello! Yes I had had MAP or MAPP chemo, that’s methotrexate, doxyrubicin and cisplatin. They added a fourth one in after my surgery as I couldn’t continue with the Methotrexate.

I’m so sorry you are going through this, it’s very frightening. But you will get through it!! The chemo nurses are fantastic and I hope your consultant is too.

my cancer had spread all the way up my jaw by the time I started Chemo, so the surgery was extensive. The recovery is so slow from it all, I am currently in remission though  My cancer was obliterated completely before I had surgery - something nobody expected but it is possible!

It’s a long and difficult road, but just take one week at a time and please be gentle with yourself. Get as much help at home as you can and rest rest rest 

Sending so much support your way!!!

liz xx

I’m so sorry I hadn’t replied to you before, it’s been a bit of a journey!

I‘m so glad you are doing well 
we do have the same consultant in Birmingham - although I am also seen in Swansea as well by the surgeon who found it all.

Liz xx