I was diagnosed with a 6cm angiosarcoma of the left femur... an implant was ordered to try and save the knee but while waiting for it my femur broke... bone and muscle then had to be removed, and a femoral knee replacement performed. Histology reported back good margins and a pet scan 6 weeks later shows no sign of spread... so now 2 weeks into 12 of paclitaxel, to be followed by radiotherapy, then another 6 weeks of paclitaxel.
I'm just wondering how you all cope with the fear of more bad news? I'm an overthinker at the best of times and I'm kind of struggling with it.
Hi Big Stevie
I’m Anne, one of the Community Champions here on the Online Community and, although I'm not a member of this group, I noticed that your post hadn't had any replies yet. Responding to you will 'bump' it back to the top of the discussion list again.
How to cope with the fear of bad news is a difficult one to answer as we're all different. For me, I just tried to concentrate on each step of the treatment plan and tried not to think too far ahead. I'd fill my time, as much as I could, doing things that I enjoyed to keep my mind from wandering to the 'what ifs'.
Someone once said to me that worrying won't change the outcome but it will ruin the present and I try to live by that.
Hi Anne. Thanks for replying, I just read your story there and see you've been through a lot the past few years... I'm on high alert now for any wee spot that comes up, I'm worrying is it just a spot or something more. With angiosarcoma they've made it clear that if it spreads it could be game over, they could try and manage it but will be difficult. I know I have to try and put that to the back of my mind and stay positive that the recent pet scan was clear and I'm now getting chemo to hopefully stop that happening, but it's not easy.
Hi
Yes, I have been put through the mill a bit but I'm out the other side now I don't think the worry of a recurrence ever goes away. I've just learned to keep it firmly shut away... well for most of the time anyway.
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