Ewing's Sarcoma

Hi Eraserhead

Welcome to the forum . I think your emotions are totally understandable given it’s your precious child having to endure treatment. No wonder you have finding it hard .

I am wondering if you would like to chat with our helpline staff0808 808 0000 who also cover the emotional aspects and may have some insight into local resources that might be able to support you .

I also contacted my GP . You are only human and this is tough by anyone’s standards .

Your daughter sounds absolutely amazing and I wish her every success going forward with her care .

Take care ,

Court 

I just found out today that my 12yr old daughter also has ewings sarcoma. I'm so scared but can't show it, so I can totally imagine how you are feeling. I wish your lovely girl all the very best with her treatment, and for you I hope you have all the best support around you, it's a scary time. Sending all my thoughts to you. x

Thank you for your well wishes, and I'm so sorry you're now going through the same thing. My daughter just finished her second round of chemo. So far - touch wood - she's had virtually no side effects, other than starting to lose her hair. She has school lessons every day in the hospital, and she even enjoys seeing the physiotherapists. She's so relaxed and chilled, while I'm quietly struggling to hold it together. The surgeons, doctors, oncology team, nurses and everyone else have been utterly superb throughout this. My thoughts go out to you, and I hope your daughter's treatment goes well.