Sacral Chordoma

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Hi everyone.

I turn 34 next month and I’ve recently been diagnosed with a sacral chordoma. It’s about 4” in size and currently it’s affecting my urine stream, sexual dysfunction and causing pain in my legs on occasion. I’ve spent two days at the Royal Orthopaedic Hospital in Birmingham for a biopsy just so they can confirm it 100% but the prognosis is quite clear. 

I’m quite worried about the whole surgery and have no clue to what to expect.

Is there anyone who has had the surgery and it been a success. What were the risks involved and did any of the risks actually end up happening.

Many thanks 

  • Hi  and a very warm welcome to the online community which I hope you'll find is both an informative and supportive place to be.

    It 's natural to worry about your upcoming surgery so I can understand you wanting to connect with others who have had it.

    I'm not a member of this forum, but noticed that your post hadn't had any replies yet. Responding to you will 'bump' it back to the top of the discussion list again.

    While you're waiting for replies, it would be great if you could put something about your diagnosis and proposed treatment into your profile as it really helps others when replying to you and also when looking for someone on a similar pathway. It also means that you don't have to keep repeating yourself. To do this click on your username and then select 'Profile'. You can amend it at any time and if you're not sure what to write you can take a look at mine by clicking on my username.

    Wishing you all the best with your surgery

    x

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