Recently Diagnosed with Bladder Cancer

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Hi All

im new here and recently diagnosed with Bladder Cancer. I had had a Chronic Cough for 16 weeks the GP said it was a chest infection but 2 lots of antibiotics later  no difference so GP ordered a CT scan and instead of just scanning my chest they decided to scan my chest stomach and pelvic area. Two weeks later I received a call from my GP asking me to go straight up to the surgery. She said your chest is clear and your other organs look good but it’s thrown us a bit of a curve ball the radiologist has spotted a tumour in your bladder and suspects it’s bladder cancer. Im sure you all know I wasn’t ready for that news and had to get my head around it. She put me on a fast track cancer referral to see a Consultant Urologist at my local hospital. He booked me straight in for a Cystoscopy which he performed himself. While I was laid on the table he said I’m sorry to tell you it is bladder cancer do you want to see the tumour and I said yes so I turned on my side and he magnified it on the screen. He said I’d be put on a fast track to have an operation to remove the tumour and take 4 biopsies from the different layers of the bladder wall. This was done 15 days ago and I’ve had a phone call today to book me in for Monday to discuss the findings from Histology from the tumour and the biopsies. So on Monday I’ll be told how aggressive it is and what stage the cancer is at. The waiting since the operation to find out has been bad as I’m sure you all know. I’m being positive and focusing on a good result but you can’t help your brain from time to time considering the worst case scenario. I’m at the point where I just need to know. Then hopefully my brain will shut down at night and I can get a good nights sleep 

  • Hi  . We know all the emotions you will be going through now . but let me welcome you to this friendly and supportive group. You will get plenty of help and support here going forward. Firstly know that bc can be treated successfully one way or another. Good to know you have already had your TURBT procedure and biopsies. It sounds as though you know the results will determine the next step. Always best to have someone with you at your consultation as you can be overwhelmed with info. When you know exactly what you are dealing we will be able to help more. The early days of uncertainty and not knowing can be the worst. Lots of experience here so always someone with an answer to any questions or just come to have a chat and get things off your chest.We understand. Best wishes.

    Best wishes to All,   rily.

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  • Hi Sweep, I have just got home after being discharged from the hospital at 9:00 pm tonight. I had a cystoscopy in June that indicated a bladder tumour. I had a TURBT on the 30th July and received my histology report 2 weeks later. Today I had a second TURBT and a biopsy taken from my bladder wall. I couldn't believe I was coming home the same day. I was expecting a stent, but the surgeon said it wasn't required after all. Like you, I now have to wait for the histology from today's biopsy. I know the waiting is hard. This support group has been and remains a great benefit to me. You're not alone.

    Love

    Barbara

  • Hi Barbara I was diagnosed with  bladder cancer  yesterday,  as  you can imagine  I've had  better  days,  feeling  positive  but need to speak with fellow  people  with the  same problem  to help with treatment  and recovery,  very scary  at the moment,  I've just  turned  65.thanks

  • Dear Sweep1056,

    Welcome to this forum where we have all experienced some variation of your story, even if most of us had some inkling that we had some bladder problem from the start!

    In fact, while it must have been a big shock to hear you have a bladder tumour despite not having symptoms from that area, you may perhaps eventually come to think that it is a good thing you have had it diagnosed now, rather than later. 

    I hope you are recovering well from your TURBT operstion. It's not surprising that you are anxious about Monday's meeting. At least you will soon know what treatment they are offering and hopefully you can be reassured that they will do their best to get you through this quickly and efficiently.

    Bladder cancer is very treatable and it sounds as if your hospital is experienced. There are excellent resources re Bladder cancer available on the Macmillan site once you know what you are facing and people here  can give you practical insights as well.

    All the best,

    Latestart

  • Thank you so much for your reply ……family and friends have been great but until you go through it you have no idea of what an emotional roller coaster it can be that’s why I thought I’d talk to this community to utilise the knowledge and support Heart️

  • Hi Barbara 

    thanks for your reply Barbara …….have you had to have a second TURBT because another tumour has grown after just two months ?

  • Hi Sweep1056,Welcome to our friendly group.I hope you find it helpful.Best wishes Jane 

  • Hi Rickstarr65,Welcome to the group.I hope you find it friendly and supportive.Best wishes Jane 

  • Hi  and a welcome to the group to you. Best wishes.

    Best wishes to All,   rily.

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  • Hi again  . Follow up TURBts are routine in most cases. Usually less severe than the first. Just a mopping up job with further biopsies. Along with some scans they all form part of the jigsaw to get to a more accurate diagnosis. Best wishes.

    Best wishes to All,   rily.

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