Hi All,
My brother has his appointment with the Oncologist in just over a week's time which I'm going along to. I've had some concerns about the hospital and thought about getting a referral elsewhere as there were a couple of things like the surgeon forgetting to book a cystogram first time around which was picked up at the last minute by the nurse before she administered the Mytomycin C etc and the fact because they believed my brother's bladder was leaking he didn't receive the Mytomycin until a month later and that was only because I chased for over a week and make a complaint to PALS.
A friend of a friend who is a Consultant Radiologist in bladder cancer elsewhere in the country recommended a number of the Oncologists at the hospital. Fortunately when I rang to request that my brother see one particular person I was told he was down to see that person. However, the information we now have is different. When I rang to discuss with the outpatients desk I was told they can't guarantee that he will see the same person each time and so it may change. My concern is the lack of consistency which I think is important to build trust and confidence when you are going through such a scary experience.
It would interesting to hear other people's experience of whether they saw multiple different consultants during their treatment and whether you had any success if you tried to see one specific person.
Many thanks.
Hi Butterfly52 . I was fortunate to have the same oncologist from day 1. I saw her regularly throughout my chemo and radiotherapy. After treatment finished, I had checks and meetings every 3 months for 2 years . Then moved to 6 month consultations up to 6 years before being discharged. That was over ten years ago and I can understand how things may have changed over the years. I hope all goes well with your brother. Best wishes.
