Round 2 Turbt on the 9th

Hi Paul welcome to this friendly forum. I too am on the BCG trail for a very high risk BC so understand your situation.I am sorry to hear you are going through this . Bladder cancer is known for its recurrence, it makes it quite a roller coaster of a journey doesnt it. I know of and have read from folk on here about the recurrences , with variable biopsy results determining the next steps of treatment. Its the waiting for the results is so very hard, often fearing the worst and feeling anxiety plus . Fingers crossed for you the biopsy will come back a lower grade. Keep in touch and let us know how you get on. Do you have a date yet for the surgery ?

Hi PaulD,Sorry to hear it’s back.Best wishes for your TURBT.Jane x

Dear PaulD,

I hope the second TURBT goes well. I think they remove any tumour during it unless while trying they find it has gone into the muscle - mine had. That was what my consultant told me aanyhow. I only had one TURBT (2022) so I don't recall much else.

Personally I was glad to get rid of my faulty bladder but should say that even after that, at first quarterly and now 6 monthly, I have checks, blood tests and chest to pelvis CT scans to see if is back. And of course now I have no bladder it might be anywhere. 

I try not to think about it and usually succeed until I can see the tests online.

All the best 

Latestart

Hi Angela 

Thanks for you your kind words mines the same high grade, TURBT on 09th June and will wait and see action from this 

Hi 

Thank you, I kinda wami g to the idea of bladder removal get rid of the ticking time bomb, clearly bcg aint worked so maybe just get rid if they give me that option again 

Thanks Jane 

we shall be thinking of you , take care 

Hi Paul,

I am sorry to hear this news. I myself am 2 weeks away from starting 24 sessions of BCG for high grade BC. Stay strong and positive. I totally understand the wait for results and then follow-ups drives you insane. Good luck and take care. Fingers crossed for you.

Rich

Good luck for you as well Rich I have had 3 years of BCG and only had one set left and now this set back just got to stay positive