G3 pTa bladder TCC

Hi, new here having been diagnosed with G3 pTa bladder TCC last week. 

I have had CT scans from chest down. I am waiting to start BCG treatment which has been delayed as waiting for major hospital in area to review my chest scan at their MDT meeting, which should be this week. 

I am not new to the forum as I had bowel cancer tumour removed last February. I had a right hemi-colectomy which is basically half my bowel removed. Before this I had a lot of bowel problems/disease but have got over the op despite the other challenges. When I had my meeting with the Urology consultant we asked if the cancers were connected, she said they weren't. She wants me to start BCG treatment urgently but I have been held back by the chest CT scan. I want to get started asap and getting frustrated that it's taking so long. I'm using distraction techniques to take my mind off of it all. I have to say I am getting concerned that there may be problems with my chest. I hope there is no cancer anywhere there!

I am grateful to have caught my cancer early again, I have been so lucky. I have had a number of years of UTI's that never seemed to fully clear. I had a cystoscopy in 2019 and my bladder was clear then. With the almost constant UTI's I hadn't been out much, wanting to stay home, especially during the incontinent times so my health isn't so good at the moment. I have other health problems too and the whole thing really got me down. I had a UTI when I had my TURBT, the catheter wasn't removed until the next day and I was in absolute undescribable agony. The hospital wasn't an easy time, the recovery team were excellent but the ward staff were not. I got myself out of there as soon as I could!!

Before my TURBT I planted seeds for the garden as I usually do in February/March in the hope that it would help me see them growing and get me back in the garden this summer. It has helped enormously, being out in the fresh air, along with the recent sunshine has lifted my spirits.

I live with my partner but along way from my family, I'm so thankful for his support, he's looking after me well. I am trying to look out for him as I know it is hard on him waiting for news too. 

I am also very grateful to everyone on here, whether new or experienced in this that have shared their stories, you have already helped me so much. I know that I have waffled on a lot but it's really helped to finally get it all out here. If you are still reading, thank you, you have a lot of patience :-)

Jilly