Good morning everybody, I hope you’re all keeping well…im new here so thought I’d share a little background with my dads situation in hopes to sit alongside some lovely people who are experiencing the same thing as my dad is, I’m his daughter and I’m fighting hard for him in anyway possible. It’s taken me a lot to join this forum including MacMillan itself as it’s facing reality in a way which is scary in itself..
in October this year dad (68) was experiencing macroscopic hematuria on every void which prompted us to seek medical attention, eventually the CT scan revealed a 3cm mass in dads bladder, a few weeks later the procedure TURBT was performed on 17th November and the surgeon said it was a large mass but didn’t disclose exact measurements, complete resection on the discharge summary was noted and new diagnosis of cancer was given.. 4 week to date we’ve still not heard a single thing back from the hospital, our hospital is in Essex at princess Alexandra, I’ve called and called, emailed so many people with no response, this waiting game is painful, i managed to get hold of the ward dad was initially admitted to and they were able to inform me dad was on the list for MDT this Thursday and that we’d hear soon for an appointment to get results (patiently awaiting) yesterday dad received another pre-op questionnaire to fill out as he’s now been placed on a waiting list for surgery…this has confused us all and I can’t figure out what a second surgery would be for but most of all out of a waiting list? What are they planning behind the scenes for him? We still don’t know what’s going nor the stage / grade etc.
was wondering if anyone is or has been in a similar situation, it would be lovely to shed some light on if you’re willing?
it’s been a journey and a half already, and I have a feeling it only just started 
thank you for taking the time to read, all the luck in the world to each and everyone of you.
Hi Indigogemini and welcome to this friendly and supportive group. Sorry to hear about dad but good to know you are looking out for him. The surgery planned for him sounds like a follow up TURBT. This is common in most cases. Usually not as severe as the first, it is a mopping up procedure with further biopsies to give a more accurate diagnosis. Dad will probably have some scans along the way. When he gets his results meeting, he should be given a stage and grade and a plan of action. Always best to have someone with him at any meeting as you can sometimes get overwhelmed with info. Lots of experiences here so usually someone with answers to any questions. I hope all goes well. Best wishes.
Hello there Rily,
Thank you so much for taking the time to reply to me, you’ve honestly given me such comforting support, my mind had automatically gone straight to worse case scenario and this must be something super, super bad. It panicked me to think they need to go in again but understanding what this all means and somewhat standard procedure has given me some relief, I’m so grateful for you…it definitely makes sense too as dads mass was bigger than expected, I can’t bare this waiting much longer especially when the haven’t explained anything since the 17th but not much choice right now.
thank you for your wonderful welcome, I’m so happy to be here now 
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