Hi, I’m writing in behalf of my Dad.
He was diagnosed with Bladder Cancer 2 months ago where he was booked in a date for an operation pretty quickly but he was unable to have due to getting sepsis due to a UTI. He has since had a meeting with the anaesthetist who has now sent him for a heart echo due to him having stents. At diagnosis we were told he would have a die to check his liver and kidneys which he hasn’t had.
Since diagnosis we have had no follow up appointment or check in and are unsure of what is really going on and would like to know the severity of it really.
is this normal procedure to have only spoken to a specialist on the day of diagnosis and nothing 2 months later. We feel left in the dark and forgotten about.
Hi Mikala,Welcome to our friendly group.I’m sorry about your dad’s diagnosis.If your dad was allocated a specialist nurse (CNS) then you could contact them to find out what is happening.If he doesn’t have a CNS then try contacting the urology secretaries.It may be that the delay is caused by your dad’s recent sepsis.It is usual to get a TURBT procedure where biopsies are taken and this is often followed by a second TURBT a few weeks later.It’s normal to have some form of scan(s) when first diagnosed.Once the results of the scans and biopsies are in your dad will know what treatment is available to him.Feel free to ask any questions on here.We are all here to help and support.Best wishes Jane
Thank you ever so much for your reply.
Im not sure he was given a specialist nurse. I feel maybe him and his partner maybe didn’t fully take in all of the information at diagnosis. Do you know how I could find out the contact details for the urology team to try and contact them?
is it usual procedure to be check for spread?
Hi Mikala,If your dad has a hospital letter there should be a urology contact phone number and email on there.Or you can type the name of the hospital into Google and under urology there should be contact details.The scan(s) done at the start of diagnosis will check for spread and any further scans will be compared to those to see if there are any changes.The TURBT procedure stands for Transurethral resection of bladder tumour and this is done under a general anaesthetic.The bladder will be inspected using a camera and anything abnormal looking will be taken out for biopsy.It’s common to have another TURBT a few weeks after the first and further biopsies.Your dad will need to drink plenty of fluids after a TURBT.It’s a shock to get a cancer diagnosis but bladder cancer can usually be successfully treated.Jane x
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