New to all of this

Hi Th7b24208,Welcome to our friendly group though I’m sorry you find yourself here.I hope someone with the same result will be along to help you.It’s a supportive group so feel free to ask any questions.Best wishes Jane 

You are understandably somewhat shocked by all this. I can recall the sick feeling when my consultant mentioned the possibility of needing bladder removal. Mine was Grade 3Ta, but no CIS. After much deliberating, I actually chose surgery and have no regrets. 

It is a weighty dilemma and you need to be well informed about the risks and benefits, pros and cons, side effects and likely chance of cure before making your choice, in the light of your own personal circumstances. BC is highly liekly to recur, and to progress to become more dangerous.

You will hear from people who have been in a similar position and doing well, or maybe tried BCG and gone on to have surgery later. (My consultant old me, 14 years ago, that about 50% patients having BCG ultimately have surgery anyway.) You will not hear much from those who didn't do so well, because alas, they became incurable. 

Very best wishes making your decision.

I was diagnosed with G3pTa back in January 2025 and after consultation decided to go the BCG route. As has been pointed out it's best to be fully aware of all the information that's available before making your decision. There's lots here at this sight and your specialist will go through everything when you ask.

I too was offered removal as an option but chose the treatment first as an operation of this size is quite invasive and I'm a very active person and didn't want to be laid up for a while and of course with regular check ups I have the operation as a back up later on.

A far as I know the odds of recurrence after BCG are a Teasswill has mentioned in their reply. So 50% chance of recurring.

It's a difficult choice and I wish you well with your decision.

best

Rob

I had a 5cm tumour G3 T1 with small cis  remove two years ago next month. I've have had 15 BCG treatments so far and all my checks have been clear I am due to get next 3 treatments starting 15th November. Wishing you well on whatever treatment you choose. Lynn x