Hello everyone,
I have beenn looking at alot of these threads on here to get some reassurance after my dad's bladder cancer diagnosis yesterday. He has 2 types, Grade 1 non invasive papillary urothelial carcinoma and another 3cm patch/tumour of CIS with 'no invasive malignancy'.
Next step is the op to blitz the bladder (in 2 wks time) and then BCG treatment for 6 weeks, regular cameras and possibly more BCG treatment after this.
I suppose the reason for my message on here is to see how successful this treatment is for CIS grade tumours as I understand the return rate is quite high. I appreciate everybody is different and reacts to treatment differently and I probably don't want to hear any bad outcomes !
Im worried for his BCG treatment which will start in 4 weeks and how he will be with it and cope with the side effects.
He has no idea about my concerns as I am remaining positive with him and telling him we are going to kick cancers ar*e! Inside, im pretty scared to be honest.
Any words of advice or reassurance would be greatly appreciated, thank you.
Hi Dray_L341418 and a warm welcome to the group although sorry to hear your dad has BC. Firstly be aware that bladder cancer can be treated successfully . CIS is a bit more difficult but still treatable. BCG treatment has been used for over 50 years and the main treatment for non invasive BC. The effects of treatment are varied and cannot be predicted. Some sail through it while others have severe effects, but most are somewhere in the middle with mild side effects. Lots of experience here to help as you and dad go forward, so always someone here to answer any questions. Best wishes.
Bless you, thanks so much for your fast response and reassurance. He is 68yrs old and his urologist describes him as a 'fit and healthy man, so I am hoping this will see him in good stead.
Im making a plan and list of helpful things to get him when treatment starts which currently includes Lemon Barley, bleach and lots of anti bac wipes !
Thanks again for your reassurance :)
Hi Dray. Being fit does help to get through treatment. I was 64 when diagnosed and further down the line than your dad. That was over ten years ago along with many others here, so hopefully that will give you something positive to focus on. Stick with us. It can be a long process and you will get lots of support going forward. best wishes.
Hi Dray,
Welcome to this friendly forum.
Grade 3 non invasive (G3p Ta tcc) diagnosis here.
Diagnosed in Dec 2022, two TURBTS and 18 BCGs in. Had my last biopsy results in couple of weeks ago and no reoccurrence ( for which I'm grateful).
The BCG as rily said can vary for each individual, so I can only give my personal experience.
Your dad will start with the induction course of six instillations ( one per week). Then will probably move to maintance sessions being 3 instillations (again once a week).
I'm scheduled to have 27 Instillations, but this can change with Trust's).
To begin with I didn't find the BCG too bad, urgency for 24 hours, so up during the night a bit. But the effects did get worse the more I had.
Currently my bladder has Chronic Inflammation (from BCG 18) so I'm delaying my next batch.
Thankfully my treatment has worked, so can't really grumble.
Wishing you and your dad all the best.
Quite a few of us going through BCG on here, so any additional questions please fire away.
Trevor
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