TCC cancer in kidney.

Hi Suecol . Sorry to hear of your heart problems. It must be a worry on top of everything else. It's always hard not to overthink things but when you see the consultant tomorrow you will know and then have a plan going forward. Let us know how it goes. Best wishes.

• Well today was really strange and very worrying.  I left a message for Macmillan  nurse to contact me today please but got a call from a girl who said she was admin only,   that she was going to send an appointment to discuss results of the scan. -  never a good sign.  That the nurse would not be phoning me and would not discuss results over the phone.   Well to me this sounds serious and possibly unlikely to involve more treatment.   So after my initial melt down earlier I now have to sit and worry.  Apart from the breathing struggles I feel OK but that means nothing.  Have you had a time when nurses simply refuse to talk to you,   how bad was the news  ??

Hi

Sorry to hear your news. Kidney cancer is usually slow growing and there are a number of low intrusive treatments.

1. Today I received update.  Won't get official report until Saturday but duty doctor at my surgery told me today. -  metastatic  lesions in my liver.    So I guess probable death sentence.    I am still trying to process it.  I know I can't have surgery so not sure if anything but seems pretty final and explains why nobody would talk to me last week.   Not sure how I should react.  

Hi

You might not be able to surgery, but ablation might be a possibility.

Or targeted radiotherapy sabr