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Hi

i was diagnosed with CIS Bladder cancer in July 2024 after a long journey of benign bladder tumors.  I also have stage three kidney failure.  I started the BCG journey, had TUBT and biopsies. I have had four biopsies taken recently and have a face to face meeting with urologist/oncologist next week to discuss the results.  I have a fear the cancer is back more aggressively and I will now be looking at removal.  I have been following (stealthily) the q&a about stoma or neo.

  • Hi Tizz101,Welcome to our friendly group.A few of us have undergone bladder removal and can help with anything you want to know and support you through if you do need a cystectomy.Best wishes for your meeting next week.Jane x

  • Good to be informed in advance, but do keep an open mind about what they might say. Hopefully whatever the options, they will give you time to decide, so you can quiz them about pros & cons etc.. Feel free to come back here & ask any questions.