High grade Non invasive bladder cancer

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I was diagnosed with CSI a week ago. Was told they had removed the cancer when they did a biopsy on the2 October . Had a Ct scan yesterday 20 November to check ck for any residual cancer cells  and seeing the hospital nurse on Monday for the  start of the BCG treatment .Has anyone else had this and how did it go ? I am feeling scared and need to talk to someone else who is going through this.

  • Good evening Odin. My experience of BCG , a straight forward procedure lasting five or ten minutes. Uncomfortable rather than painful. Some talk about after effects but I had none . Remember that modesty and urology don’t go together , best wishes, John

  • Hi Odin,

    Currently just over half way through my BCG treatment's. 15 of 27.

    The actual process of having the BCG inserted into the bladder is pretty painless. They ask you to retain in the bladder for a couple of hours before voiding. 

    I don't always make the two hours, but it seems to be working so far ( touch wood).

    For about 24 hours after I have extreme urgency which can be tiring for sure. 

    Overall it's not been too bad for me. Although the last couple of sessions did make my bladder inflamed, which caused some discomfort.

    I hope you find the process ok also.

    Trevor 

  • Thank you .its the fear before that is getting me.

  • Tx.As for modesty that went out the window a long while ago’ good to hear that it’s uncomfortable but not painful ,I hope that I don’t get side effects