High grade Non invasive bladder cancer

Hi Odin,Welcome to our friendly group.I hope you will find it helpful and supportive.Good luck with your treatment.Love Jane xx

Tx.i am so glad i joined this forum Elaine

Hi Odin 

My Experience is similar but not the same I was diagnosed High Grade TaG2 so non invasive also had two TURBTS the second of which showed a benign histology and I am now on surveillance the goal of adjuvant therapy is I think is to get you to that benign histology mark or keep it the cells stable and you will see and hear from many of our fellow patients it does work it’s a marathon not a sprint this best of luck with your follow up treatment plenty of positive outcomes here all the best 

Ste 

Tx Elaine 

So far so good ,had my first treatment on Monday. Managed to retain it for an hour but told that was ok. Bit of trial and error in the going to the loo  we are on a septic tank so can’t use the house toilet as bleach is a no no with a septic tank. Solution was a porta potty that fitted in the toilet which retained the bleach and the contents of my bladder. So that was one problem solved. Sleep was naps as every 30 mins the loo called . Day 2 felt iffy when I got up but by this evening I feel fine by 8pm I had stopped trying for the Guiness book of records for how many visits per hour I went to the loo. Maybe I will get some sleep tonight. So now it’s onwards and upwards.

Hi Odin,

Good to hear you're treatment has started and you're feeling better now.

My bedroom carpet has worn out with all my visits to and from the loo after each BCG. Those 24 hours can be hard going..

Wishing you all the best.

Trevor 

Tx Trevor it’s my excercise for the day.Good to hear it’s only 24 hours .i was dreading it but so far I can cope with it.

Well done Elaine,1st one out of the way and you coped well. I hope you get a good nights sleep , tomorrow is a new day and you can carry on as usual. Glad it only lasted 24 hrs for you. Thanks for posting 

Tx Angela your experience has helped me .

Day 3 started well as I got 1 to2 hours sleep in between visiting my best friend the toilet, managed to make the feeds for our two ponies and feed the wild birds. My  three GSd’s like the pony feed bit as they are addicted to carrots and queue up for two carrots each every morning. After I felt my legs were a bit wobbly but after a rest that went.managed a bit of shopping  and rested for the afternoon. By tea time I was back to seeing my best friend rather more than I had hoped and it now hurts to pass urine,thought that feeling had gone but no it’s back as mentioned in the list of side effects hopefully that will pass as I must confess it makes me swear when I go to the loo. But so far it is still all doable.