Update from me...

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Hi, I posted a over a week ago:  Next steps/timescales? 

Here is a little update:

The Consultant has confirmed my Husbands urachal remnant has a tumour with Perivesical fat stranding, which is located at the top of the bladder dome outside of the bladder.

He also has cancer inside the bladder at the top too, which is the mass my Husband saw on camera that looked like coral.

They also said that my Husband’s bowel is badly involved. The bowel is inflammed too, and signs of divertitilcular disease and loops of the bowel have attached itself to the bladder in that area too.

They now need to confirm if this is down to bowel cancer that's invaded the bladder (which they believe it could be as the DNA make up of urachal remnant cancer is normally the same as colon cancer.) or if its a seperate issues like eroded divertitilcular and not bowel cancer.

They have referred him to colorectal for the bowel to be investigated. That apt is in a few weeks and they have marked it as priority.

Also said a biopsy will be needed to confirm which is the primary, bowel or bladder cancer... they will work with both urology and colorectal dept to decide next steps.

So still more waiting...

Xxx

  • Hi  . Your husband does seem to have a lot going on and I can understand the anxiety of not knowing. I  hope they come up with some answers and have a plan going forward. Best wishes.

    Best wishes to All,   rily.

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  • Thank you Rily, it's such a strange time. We have been in limbo for weeks and still there. I'm sure that feeling will remain until we know more soon. X

  • Hi MrsWife, the waiting and not knowing what the next steps are must be incredibly stressful for you both. my heart goes out to you, just wanted to wish you all the best and hope you get some answers very soon. 

    Much love Angela x

  • Hi mrswife,

    Sound's like your husband has been through a lot.

    t seems the waiting is never ending but hopefully you will get all the answers soonest.

    Wishing you and your husband all the best.

    Trevor 

  • Hi MrsWife,I’m sorry to hear you have to do more waiting.I hope it won’t be too much longer before you both know the situation.Best wishes and love to you both.Jane xx

  • Thanks everyone. Since hearing the news we are not as emotional as we were when waiting for it. We kind of now know what we are dealing with, just need to confirm the bowel side of things. I'm sure the emotions will rise again and it will be a never ending rollercoaster for a while. 

    Thank you for being a safe space to share this with. Xx