Update from me...

Hi MrsWife . Your husband does seem to have a lot going on and I can understand the anxiety of not knowing. I  hope they come up with some answers and have a plan going forward. Best wishes.

Thank you Rily, it's such a strange time. We have been in limbo for weeks and still there. I'm sure that feeling will remain until we know more soon. X

Hi MrsWife, the waiting and not knowing what the next steps are must be incredibly stressful for you both. my heart goes out to you, just wanted to wish you all the best and hope you get some answers very soon. 

Hi mrswife,

Sound's like your husband has been through a lot.

t seems the waiting is never ending but hopefully you will get all the answers soonest.

Wishing you and your husband all the best.

Trevor 

Hi MrsWife,I’m sorry to hear you have to do more waiting.I hope it won’t be too much longer before you both know the situation.Best wishes and love to you both.Jane xx

Thanks everyone. Since hearing the news we are not as emotional as we were when waiting for it. We kind of now know what we are dealing with, just need to confirm the bowel side of things. I'm sure the emotions will rise again and it will be a never ending rollercoaster for a while. 

Thank you for being a safe space to share this with. Xx

Hi,

I was searching the forums for info on urachal cancer and found your post.

i was initially diagnosed with bowel cancer and on my CT scan they found what they thought was a urachal cyst.

i had an anterior resection for my bowel cancer and a partial cystectomy for the bladder cancer. The cancer was also in my lymph nodes and blood vessels that were removed from near my bowel. 

both cancers are Adenocarcinoma. The urachal tumour has been sent off for more tests to determine if it’s a net from the bowel or a separate cancer. 

at present I’m In limbo, waiting to find out if I’m stage 4 bowel cancer or that I have 2 separate cancers, with one being rare and hard to treat.

im waiting for my 1st oncology appt in 3 weeks as the bowel team have said I definitely need chemo. 

how did your husband get on?

has he had chemo? 

was it a separate cancer on his bowel?

im hoping things are going better for you and your husband xx

Hi. So sorry you're going through this. My heart truly hurts for you as the pain we experienced when we were told our jews was horrendous. 

I do actually have positive news regarding my Husband. After having further tests they informed us it was not cancer at all and a benign mass and also a cyst that hasn't grown from the bowel into the bladder. Thankfully this required no treatment and he has a follow up next month to see how much it has regressed as the scan at the end of last year showed improvement. 

The consultants were as shocked as us that it wasn't what they told us it was. Obviously we are so pleased, it took us a long time to accept it as we had been told it was definitely cancer then it definitely wasnt. It messed with our life big time and he was experiencinga lot of guilt for worrying everyone - but that wasnt his fault.. We do know he will need a bowel resection at some point due to the damage the mass caused but hopefully not just yet as he is dowing much better, still experiencing discomfort etc but without a cancer diagnosis. 

I truly hope your treatment goes smoothly and you will be in my thoughts. Learn on those around you. You don't have to deal with it alone. X