Another month of waiting..

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Good evening everyone, I hope your all as well as can be.

had my TURBT #2 two Weeks ago. Was told that results would be in around 2-3 weeks time. Got a message today to say that a phone appointment has been booked for me on the 18th June. Is this normal? I’m reading into it as “if it was bad news they wouldn’t leave it for 6 weeks to tell me” 

Cheers everyone Nigel

  •  . hi Nigel. You can never read anything in to the timing of things. The results should be ready by now but it is usually down to the availability of your consultant to talk to you. I hope all goes well. Best wishes.

    Best wishes to All,   rily.

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  • Cheers Rily, the waiting is the worst part… hope your well.

  • Hi Nigel. Doing well so far ten years down the line. Cheers.

    Best wishes to All,   rily.

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  • That’s brilliant Rily, and thank you for being here to answer my questions. 
    I know I say it a lot, but without this forum I would be in  a right mess. 

  • Hi Nigel, the waiting is just awful isn't it. I agree with Rily that you cant read anything into it. I had a 3rd turbt in november just to biopsy a red patch . I waited 42 days all over Xmas & new year. It was down to short staff, holidays and consultant availability. It isnt nice having to wait, I try not to let the what ifs take over, they can really mess with your head.

     I am sure the nerves will kick in a couple of days before the call, but thats in the future. I do mindfulness to help me to stay in the moment and live for today. It does help me.
     we can all prop each other up when having a wobble, this forum will get you through the wobbly bits.

    Much love Angela x

  • Hi Nigel. Just a tip for when you get your call. Write down any questions you may have beforehand.  Record the conversation if you can as you will forget half of what's said. Ask to be copied in to the notes. It makes things easier to understand when in black and white. Best wishes.

    Best wishes to All,   rily.

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  • Hi Angela, yep I’m going back to living in the moment.

    im not so much having a wobble more disappointed as I’ve been counting down the days.

    but I trust the process. Hope your well 

    Nigel

  • Hi Rily, 

    im gonna record the phone conversation, I did this for the last phone appointment. It does help. 

    My thinking that it can’t be bad news if they are keeping me waiting is a way of trying to cope with all of this. 

  • Hi Nigel,I’m sorry you still waiting.It’s not too much longer now even though it feels like forever.Let us know how you get on,fingers crossed.Love Jane x

  • Thank you Jane, 

    im ok, managed to get my dog to go out in the rain.. it really is a big deal Grin

    home early today, I’m gonna have a cook up..not sure what yet. 

    Nigel