Hi. Ive just joined the forum and finding my way around, so hello. I’m just about to have my 4th BCG instillation following 2 biopsies and a TURBT. I was diagnosed with bladder non muscle invasive high risk carcinoma in situ and initially underwent Mitomycin treatment. Apparently the tumour is now gone and the BCG is by way of an insurance due to themhigh chance of it returning.
My dilemma is that I am having side effects in the form of one or two aching joints and wonder if this is reactive arthritis? I am keen to continue with the full 6 weeks course but think that if I mention the side effects my treatment might be stopped or delayed. Have others been faced with this dilemma, and if so, what did you do?
I am assuming that the aches and pains will stop once the treatment is completed, or is there a risk of permanent damage? I would value any comments. Thank you.
Hello Bdb1!
I've literally on Friday just finished my 6 weeks course of BCG treatment.
I have found that from week 2 onwards along with some other side effects that I too have achey knees, elbows and left shoulder joints.
I have mentioned it each week to my CNS before each treatment and they didn't seem too worried about it and have had all my treatments without skipping a week even after a nasty reaction I had during week 2.
I found as each week went on the problem slowly got less intense after each treatment and then when I had the next dose it flared up each time.
The last 2 treatments I had though it didn't completely go away in between and also my bladder feels really raw and sore so I'm glad it's all over for a bit!
If my joint pains don't settle down in a week or so I'll keep you posted here on this chat and will contact my nurse or doctor just incase for investigation but I have a feeling it'll be fine. I'm sure this very very hot weather were currently having isn't helping matters.
I found lots of water, hot baths and try to keep moving with gentle exercise instead of constantly sitting or laying in bed helps. You should try talking to your CNS though, maybe ask if perhaps some ibuprofen or gel would help, they may have some useful tips to help cope too but most of all, you need to know that it's just part of the course of the treatment and not something that's going to ruin your joints going further! They do have other options available.
I almost had to stop my BCG treatments after a nasty reaction in week 2 and there were other treatments available to me if needed but thankfully the next week was a lot easier.
If you tap on my user name I have a diary of my treatments etc as do lots of other people on the forum. You're welcome to read it and compare notes, there may be some useful information there for you?
I hope things all go well for you during the rest of your treatments! Stick it out if you can and zap this nasty cancer away! There's lots of people here to help us all through it!
Best wishes!
Kitty xx
No problem matey!
Best of luck and hope you feel a bit brighter soon
Kittyxx
