Hi 
I've just had a TURBT on the 5th January - I first saw blood in my urine on my birthday (8th October 2023). After 4 crazy & hard fought for appointments with my GP where I was prescribed 3 different courses of antibiotics (2 were over the phone appointments) My urine was now red & full of clots & I was getting bladder spasms & the pain was escalating. I attended A&E following speaking to the 111 service twice. Saw the out of hours GP who tested my 'bloody'urine & was prescibed more antibiotics. Second visit to A&E & 12 hrs later I saw a Dr, he put me on the Fast track programme on 12th December, I had a call the next day arranging dates for CT & cystoscopy(? right label for said scopy into one's bladder?!) & bloods.
Had cystoscopy (?) On 19th December - immediately found 'tumours' & informed me re TURBT & given contact no. for CNS. rang CNS next day, discussed process & the pain I was in, she organised appointment for out of hours Dr, seen within 20 minutes of arrival & prescribed pain meds.
Had TURBT on 5th January & given chemo for 1hr post op'. Kept in hospital as urine was full of blood & clots & the pain from bladder spasms was agony, Discharged home next afternoon....I was partially incontinent of blood filled urine (I was informed that this was normal - which did ease my escalating anxiety over the state I was in!
I'm still in agony when my bladder decides to spasm...There's just no way of predicting when they're going to happen & I'm still incontinent because of the spasms.
However, the blood has gone! And I'm waiting for 4 weeks when I am being sent an appointment to discuss the results etc. After the op' my Urologist said that the tumour had grown to 3 1/2 cm & that he'd found a second tumour hiding behind the first one!
Are these bladder spasms 'normal'?!
I believe that I'm very lucky to have ŵaited the 12 hrs & 14 minutes to see the A&E Dr. I've been treated with genuine, warm & friendly staff through all procedures & I'm amazed at the speed of all my appointments...I thought I'd be waiting ages for my operation...how wrong was I?!
So, that's where I am for now - one day at a time but feeling like a lost child in a supermarket that's all new to me.Thank you for your time & patience in reading this!
xXx
